Children’s Competence to Consent
Author: Gary B. Melton
Publisher: Springer Science & Business Media
Published: 2012-12-06
Total Pages: 364
ISBN-13: 1468442899
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Zero to Eighteen Years
Author: General Medical Council (Gran Bretanya)
Publisher:
Published: 2007
Total Pages: 48
ISBN-13: 9780901458292
DOWNLOAD EBOOK →The Narrative Approach to Informed Consent
Author: Fiona Mayne
Publisher: Routledge
Published: 2021-11-15
Total Pages: 182
ISBN-13: 1000456188
DOWNLOAD EBOOK →The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.
MacArthur Competence Assessment Tool for Clinical Research (MacCAT-CR)
Author: Paul S. Appelbaum
Publisher:
Published: 2001
Total Pages: 0
ISBN-13: 9781568870717
DOWNLOAD EBOOK →The MacCAT-CR provides a structured format for capacity assessment that is adaptable to the particulars of any given research project. With the introduction of the MacCAT-CR, researchers enrolling human participants in their studieshave available for the first time a reliable and valid means of assessing their potential subject's capacity to consent to participation. The MacCAT-CR can typically be administered in 15-20 minutes. Beginning with project-specific disclosures to potential participants, the MacCAT-CR measures the four generally accepted components of decision-making competence: understanding, appreciation, reasoning, and the ability to express a choice. Quantification of subjects' responses permits comparisons across subjects and subject groups, and allows the MacCAT-CR to be used for not only for screening individual participants but also for conducting research on the characteristics of subject populations and for assessing the effectiveness of interventions designed to increase subjects' capacities.
Psychological Assessment in Clinical Practice
Author: Michel Hersen
Publisher: Routledge
Published: 2005-07-05
Total Pages: 471
ISBN-13: 1135951675
DOWNLOAD EBOOK →Appropriate for students and practitioners alike, this book teaches readers how to perform assessments on patients in the absence of the instruments and assistants that many standard procedures assume.
Ethical Conduct of Clinical Research Involving Children
Author: Institute of Medicine
Publisher: National Academies Press
Published: 2004-07-09
Total Pages: 445
ISBN-13: 0309133386
DOWNLOAD EBOOK →In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Choosing for Children
Author: Priscilla Alderson
Publisher: Taylor & Francis
Published: 2023-05-09
Total Pages: 232
ISBN-13: 1000852911
DOWNLOAD EBOOK →One mother described part of the complications of consenting to her one-week-old child’s high-risk heart surgery. ‘I can’t imagine her being any more precious to me than she is now. I can hardly bear feeling so close to her as it is...I can’t wait until I see her again. It’s worse than being in love.’ Can emotional parents be rational enough to give informed proxy consent? Research observations and interviews with many parents and practitioners in the wards, clinics and medical meetings in two London hospitals show how parents’ moral emotions of fear and hope are central to their informed decision-making and voluntary consent. This record from the 1980s offers useful historical comparisons with today’s paediatric cardiac services in both the remarkable progress over nearly 40 years and the continuing concerns.
Parenting Matters
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Published: 2016-11-21
Total Pages: 525
ISBN-13: 0309388570
DOWNLOAD EBOOK →Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Nursing Skills for Children and Young People's Mental Health
Author: Laurence Baldwin
Publisher: Springer
Published: 2019-08-02
Total Pages: 198
ISBN-13: 3030186792
DOWNLOAD EBOOK →This book focuses on those nursing skills that are truly valued and needed by children and young people with mental health problems. Whilst other books have chiefly focused on mental health conditions and treatments, this book moves away from this formulaic approach and considers what children and youth themselves need most from health professionals. It shows why nursing skills are among the most precious values for patients. This focus on therapeutic relationships, establishing trust-based forms of nursing, and empowering children and young people to develop into healthy and resilient young adults has largely been neglected, despite the feedback from those who urgently need help but often struggle to find it, or are wary of seeking help and reluctant to engage. This book focuses on the places where nurses encounter young people and seek to help them. It examines the role nurses play in specialist child and adolescent mental health settings (such as in-patient and community, as psychotherapists, and on self-harm teams) and where paediatrics nurses work with troubled young people (in emergency departments, paediatric wards and primary care). It also considers two specific areas, namely eating disorder services and consent-seeking, that could benefit from nursing skills that are currently undervalued, but are in fact invaluable. Its focus on those skills that nurses already have, but may not be consciously using, will make this book uniquely appealing to all nurses who work with children and young people with mental health problems, regardless of the setting, and an essential guide for students and experienced professionals alike.
The Family Context of Parenting in Children's Adaptation to Elementary School
Author: Philip A. Cowan
Publisher: Routledge
Published: 2005-05-06
Total Pages: 433
ISBN-13: 1135637083
DOWNLOAD EBOOK →The Family Context of Parenting in Children's Adaptation to Elementary School is a result of a longitudinal prevention study of 100 families begun the year before their first children entered kindergarten. Each family went through an assessment and then a subset was randomly chosen for group intervention. The children in both groups were then studied as they progressed through kindergarten and first grade to assess the quality of their adaptation to the school environment. The text focuses on how parent-child relationships are only one determinant of a child's academic competence, social competence, and behavior. Rather, these relationships must be understood in the context of the role they play within the family as a system. It also addresses the recent challenges to claims about the impact of parents on their children's development. The book sheds additional light on family influences within the larger social environment as a key determinant of the quality of children's adjustment to schooling. It appeals to scientists, professionals, and parents alike.
