Young People's Perspectives on End-of-Life

Young People's Perspectives on End-of-Life PDF

Author: Sarah Coombs

Publisher: Springer

Published: 2017-07-18

Total Pages: 206

ISBN-13: 3319536311

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This book challenges adult assumptions that young-people do not, cannot and should not think about death. The author uses everyday material objects in order to facilitate a range of conversations, revealing lively engagement with the topic. Cultural resources, such as literature and film, provide a rich variety of perspectives on and responses to death, whilst equally providing an opportunity to challenge many of these representations as unreal and unauthentic. The book contains personal narratives of loss and memories of loved ones, presenting a variety of encounters with significant deaths, the stories being told in an array of vibrant, amusing and emotive ways. Similarly, death is explored from a variety of religious and scientific frameworks, highlighting rich and changing perspectives. Such shifting and exciting vistas are a largely undiscovered part of young-people's lives and situate them in a landscape not often associated with childhood. Young-People's Perspectives on End-of-Life will be of interest to students and scholars across a range of disciplines, including Childhood and Youth Studies, Death Studies, Qualitative Research Methodologies, Sociology, Anthropology and Education.

Perspectives on Palliative Care for Children and Young People

Perspectives on Palliative Care for Children and Young People PDF

Author: Rita Pfund

Publisher: CRC Press

Published: 2017-11-22

Total Pages: 348

ISBN-13: 1315346648

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Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.

Approaching Death

Approaching Death PDF

Author: Committee on Care at the End of Life

Publisher: National Academies Press

Published: 1997-10-30

Total Pages: 457

ISBN-13: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Death, Dying and Palliative Care in Children and Young People

Death, Dying and Palliative Care in Children and Young People PDF

Author: Alison M. Rodriguez

Publisher:

Published: 2023

Total Pages: 0

ISBN-13: 9781003340287

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"Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the 'good death' or 'dying well', grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences"--

The Private Worlds of Dying Children

The Private Worlds of Dying Children PDF

Author: Myra Bluebond-Langner

Publisher: Princeton University Press

Published: 2020-05-05

Total Pages: 298

ISBN-13: 0691213089

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Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

Investing in the Health and Well-Being of Young Adults

Investing in the Health and Well-Being of Young Adults PDF

Author: National Research Council

Publisher: National Academies Press

Published: 2015-01-27

Total Pages: 502

ISBN-13: 0309309980

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Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.

What Does It Feel Like to Die?

What Does It Feel Like to Die? PDF

Author: Jennie Dear

Publisher: Citadel Press

Published: 2019-06-25

Total Pages: 272

ISBN-13: 0806539879

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A compassionate, honest, and illuminating look at the dying process . . . As a long-time hospice volunteer, Jennie Dear has helped countless patients, families, and caregivers cope with the many challenges of the dying process. Inspired by her own personal journey with her mother’s long-term illness, Dear demystifies the experience of dying for everyone whose lives it touches. She spoke to doctors, nurses, and caregivers, as well as families, friends, and the patients themselves. The result is a brilliantly researched, eye-opening account that combines the latest medical findings with sensitive human insights to offer real emotional support and answers to some of the questions that affect us all. Does dying hurt? A frank discussion of whether dying has to be painful—and why it sometimes is even when treatment is readily available. Is there a better way to cope with dying? Comforting stories of people who found peace in the face of death , and some of the expert methods they used for getting there. The last few hours: What does it feel like to die? Powerful glimpses from dedicated professionals into the physical experiences of people in their final moments—plus comforting words and insights from those who are there to help.

Music Therapy in Children and Young People's Palliative Care

Music Therapy in Children and Young People's Palliative Care PDF

Author: Anna Ludwig

Publisher: Jessica Kingsley Publishers

Published: 2019-08-21

Total Pages: 186

ISBN-13: 1784507350

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This book brings together music therapists who have worked in the challenging and rewarding world of children's palliative care. Examining techniques from working just with the breath, to technological advances in music therapy such as assistive recording and electronic downloading, it highlights the benefits music therapy can bring when working alongside children and young people. Drawing on the knowledge of expert music therapists, the book provides accessible guidance that practitioners can apply to their own work, including on professional development as part of a multi-disciplinary team, service evaluation, and managing publicity in the hospice setting. It addresses work with different client groups, such as teenagers, and discusses therapy with family members, including siblings. Music therapists and healthcare practitioners will be provided with the tools to reflect on their own professional challenges and deepen their understanding of the important role of music therapy in this sector.

Top Five Regrets of the Dying

Top Five Regrets of the Dying PDF

Author: Bronnie Ware

Publisher: Hay House, Inc

Published: 2019-08-13

Total Pages: 322

ISBN-13: 1401956009

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Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

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