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Choosing Down Syndrome
Author: Chris Kaposy
Publisher: MIT Press
Published: 2022-08-09
Total Pages: 237
ISBN-13: 0262546248
DOWNLOAD EBOOK →An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
The Lucky Few
Author: Heather Avis
Publisher: Zondervan
Published: 2017-03-21
Total Pages: 224
ISBN-13: 0310345499
DOWNLOAD EBOOK →When life looks radically different than the plan we have for ourselves, it's the lucky few that recognize God's plan is best. That's what adoptive mom Heather Avis learned, and that's the invitation of this book. As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves. When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few. Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.
Life with a Superhero
Author: Kathryn U. Hulings
Publisher: University of North Texas Press
Published: 2013
Total Pages: 270
ISBN-13: 1574415247
DOWNLOAD EBOOK →"Mayborn Graduate Institute of Journalism."
The Down Syndrome Diary
Author: Jamie Freeman
Publisher: Independently Published
Published: 2021-03-17
Total Pages: 250
ISBN-13:
DOWNLOAD EBOOK →If ever a book had a soul, it would be the one you're reading about right now. In 2013, when her son was just six months old, a new mama walked into a bookstore and bought a beautiful, leather-bound journal. Inside she proceeded to pour her soul out and tell her story. What story? The story of what it's truly like to have a child with Down syndrome...the story she wished she could have read the day she found out she would be part of that club. She then packed up the journal and sent it off to her friend many miles away in northern Ontario, Canada. Social media outlets had brought them together, and the sharing of this tangible journal began to bring them even closer. The spirit of the book began to grow as the diary embarked on a journey through twenty-six homes in four different countries finally making its way back into the hands of that original mama.As the stories were told and the torch was passed, The Down Syndrome Diary was born. A journal filled with words, pictures, tears, and even a few wine stains became the greatest gift someone could receive upon hearing that their child has Down syndrome. Opening these pages will give you a glance into the amazing work of art that journal became.Enjoy!
Up, Not Down Syndrome
Author: Nancy M. Schwartz
Publisher: Modern History Press
Published: 2020-04-01
Total Pages: 126
ISBN-13: 1615994629
DOWNLOAD EBOOK →Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human: * Explore what it feels like to think life, as you know it, is over. * Discover the fierce love, joy and peace a baby diagnosed with Trisomy 21 (Down syndrome) brings. * Learn the lessons this child taught his mom. * Understand the gift this baby brings to our world. * Realize the depth of the love this family has for the child. "A beautiful, honest account of not just accepting--but embracing--the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." --Sara Byala, Ph.D. "This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." --Barbara Taylor Bowman, Irving B. Harris Professor of Child Development "A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." --Rabbi David Wolpe, author of David: The Divided Heart "The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." --April Beard, Music Educator and Cellist Learn more at www.UpNotDownBook.com From Modern History Press www.ModernHistoryPress.com
The Truth About Down Syndrome
Author: Elizabeth Goodhue
Publisher:
Published: 2020-08-14
Total Pages: 256
ISBN-13: 9781735281421
DOWNLOAD EBOOK →The Truth About Down Syndrome describes in a series of vignettes a mother's experience parenting a son with Down syndrome from birth through adulthood.
The Truth about Trisomy-21
Author: Elizabeth Goodhue
Publisher:
Published: 2020-08-16
Total Pages: 256
ISBN-13: 9781735281407
DOWNLOAD EBOOK →In this book, Elizabeth traces their journey through a maze of social, governmental, medical, school, and stereotypes. Her mission has always been to bust the stereotypes people create, not just around Trisomy-21, but around anyone with a difference. As you meet William in these pages you will see that he is just like everyone else except that he has an extra chromosome, and that Elizabeth, though facing uncommon challenges, is just like every other mother devoted to raising a healthy child and seeing him into adulthood.
Fasten Your Seatbelt
Author: Brian Skotko
Publisher: Special Needs Collection
Published: 2009
Total Pages: 0
ISBN-13: 9781890627867
DOWNLOAD EBOOK →Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?
Gifts
Author: Kathryn Lynard Soper
Publisher: Special Needs Collection
Published: 2016
Total Pages: 0
ISBN-13: 9781606132760
DOWNLOAD EBOOK →This commemorative 10th anniversary edition of Gifts will include 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over 60 essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living.
