The Other Side of Alzheimer's, a Caregiver's Story

The Other Side of Alzheimer's, a Caregiver's Story PDF

Author: Marietta Harris

Publisher: Lulu.com

Published: 2009-10-30

Total Pages: 209

ISBN-13: 0615328202

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How do you handle a crisis in your life? Alzheimer's is just one condition that requires loved ones to be caregivers. We become caregivers not by choice and once we are, we lose our choices. This is a story of a woman who faced those choices and survived. 13:978-0-615-32820-1

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's PDF

Author: Patti Davis

Publisher: Liveright Publishing

Published: 2021-09-28

Total Pages: 185

ISBN-13: 1631497995

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With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

The Busy Caregiver's Guide to Advanced Alzheimer Disease

The Busy Caregiver's Guide to Advanced Alzheimer Disease PDF

Author: Jennifer R. Stelter

Publisher: JHU Press

Published: 2021-10-19

Total Pages: 193

ISBN-13: 1421441071

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"The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--

My Two Elaines

My Two Elaines PDF

Author: Martin J Schreiber

Publisher: Harper Horizon

Published: 2022-06-13

Total Pages: 192

ISBN-13: 0785291709

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In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

The Other Side of Alzheimer's

The Other Side of Alzheimer's PDF

Author: Martha-Lee B. Ellis

Publisher: BalboaPress

Published: 2012-03-07

Total Pages: 204

ISBN-13: 1452545707

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Alzheimers and marriage is a complex combination of emotions. You change, too, when your spouse has Alzheimers. This is a poignant collection of personal experiences, moving from confusion, loneliness, and fear to understanding and peace. Knowledge of resources and connecting with others who are, or have been, faced with this consuming task help you find your way through the maze of many unanticipated challenges. Finding the support of others is critical to achieving acceptance of this life-changing event. With a sprinkling of humor, this becomes a story of the power of love, allowing you to survive it. The Other Side of Alzheimers is written with honesty, sensitivity, and love. Every experience describes the physical, mental, and emotional challenges, while alluding to humor and hope. There are few published resources that deal with feelings of a spouse faced with a partners Alzheimers disease, and none I have read as good as this one. I found it to be a beautiful love story that any reader can appreciate. Carol Long, RN-BC Board Certified Gerontological Nurse Sozo Senior Wellness, Raleigh, North Carolina Ms. Ellis has written a beautiful, insightful account of the journey through Alzheimers. It reveals how love, understanding and the acceptance of change can overcome any adversity. It applies to us all as we navigate through the ebb and flow of a significant relationship. Karen Brisendine Retired Electronics Industry Business Manager Caregiver Martha-Lee Ellis has written a touching memoir that approaches Alzheimers from a wifes perspective of a scary and unpredictable course. The Other Side of Alzheimers offers a lifeline to others going through this experience, enabling them to see that they are not alone. This story has something to benefit anyone facing this disease with their spouse. Michelle S. Brovitz, MS PA American Society of Clinical Pathologists Former Pathologists Assistant for hospitals nationwide

Heeding the Caregiver Call

Heeding the Caregiver Call PDF

Author: Dr. Barbara Ella Milton Jr.

Publisher: Xlibris Corporation

Published:

Total Pages: 355

ISBN-13: 1664143645

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In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.

The Long Hello

The Long Hello PDF

Author: Cathie Borrie

Publisher:

Published: 2010

Total Pages: 293

ISBN-13: 9780981378602

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This sensuous memoir strips away all preconceptions about what it means to be, or to love, a person with Alzheimer's, giving comfort to those who have walked the caregiving path and offering insight, hope, and a compass to those embarking on the journey. -- Cover, p. [4].

The Caregiver

The Caregiver PDF

Author: Aaron Alterra

Publisher: Cornell University Press

Published: 2018-10-18

Total Pages: 230

ISBN-13: 1501720589

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Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.

Memoirs of a Caregiver

Memoirs of a Caregiver PDF

Author: Cynthia Young

Publisher: iUniverse

Published: 2013-01-31

Total Pages: 220

ISBN-13: 1475970994

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Alzheimers is a memory-robbing, debilitating disease that affects millions of Americans. For most families, having just one member afflicted with Alzheimers disease can be devastating. In her poignant memoir, Cynthia Young shares her story of love and devotion as she learns how to care for four family members stricken with Alzheimers disease over a ten-year period. Young narrates a journey filled with laughter, challenges, and sorrow as she commutes from California to Michigan to care for her mother, two aunts, and a cousin. She provides insight into how the disease progresses and gradually destroys the memory and abilities to learn, reason, make sound judgments, communicate, and carry out daily activities. While sharing her personal story and detailing how she overcame each obstacle along the way, Young also teaches other caregivers how to use valuable resources, navigate the court system as a guardian and conservator, handle the Alzheimers personality, and search for an assisted-living facility. Memoirs of a Caregiver shares one womans inspiring story of unconditional love and courage with the hope that it will encourage and empower other caregivers to be diligent, strong, and, most importantly, to never give up. A portion of the proceeds from this book will be directed to the Alzheimers Association.

What If It's Not Alzheimer's?

What If It's Not Alzheimer's? PDF

Author: Gary Radin

Publisher: Rowman & Littlefield

Published: 2022-10-15

Total Pages: 505

ISBN-13: 1633888738

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Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.