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The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers

Author: Annalee Kruger

Publisher:

Published: 2021-08-27

Total Pages: 255

ISBN-13:

How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.

Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-08

Total Pages: 367

ISBN-13: 0309448093

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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

How Not To Pull Your Family Apart

Author: Carroll Golden

Publisher: C.Golden Consulting, LLC

Published: 2023-06-22

Total Pages: 178

ISBN-13: 1647046424

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"Carroll weaves her vast experience in long term care insurance and personal insights into the MUST-READ book! It is jam-packed with helpful information families and professionals need to know in order to make informed decisions about aging planning." —Annalee Kruger, President of Care Right Inc., and author of The Invisible Patient: The Emotional, Financial, and Physical Toll on Family Caregivers Who’s going to be the physical, emotional, and financial caregiver in your family (no matter how you define family)? Few of us understand or are prepared for the breadth of lifestyle implications that come with that role. On the flip side, what if it’s you that needs care? Meet the Jones family, a multigenerational example of how it all works in the real world. Follow Jodi and her family as they suddenly must deal with her parent’s extended care needs. Tension, guilt, and a lack of information start to impact Jodi’s health, happiness, job and family, relationships. Follow along as this multigenerational family uses my three-step process to create a Care Guide, a Care Squad, and a Care Planning Team. Learn how to establish a framework to start and continue conversations, minimize tension, and gain an overview of several planning options to fit almost any budget so you’re ready for tomorrow.

The Law and Ethics of Dementia

Author: Charles Foster

Publisher: Bloomsbury Publishing

Published: 2014-12-01

Total Pages: 572

ISBN-13: 1849468192

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Dementia is a topic of enormous human, medical, economic, legal and ethical importance. Its importance grows as more of us live longer. The legal and ethical problems it raises are complex, intertwined and under-discussed. This book brings together contributions from clinicians, lawyers and ethicists – all of them world leaders in the field of dementia – and is a comprehensive, scholarly yet accessible library of all the main (and many of the fringe) perspectives. It begins with the medical facts: what is dementia? Who gets it? What are the current and future therapeutic and palliative options? What are the main challenges for medical and nursing care? The story is then taken up by the ethicists, who grapple with questions such as: is it legitimate to lie to dementia patients if that is a kind thing to do? Who is the person whose memory, preferences and personality have all been transformed by their disease? Should any constraints be placed on the sexual activity of patients? Are GPS tracking devices an unpardonable interference with the patient's freedom? These issues, and many more, are then examined through legal lenses. The book closes with accounts from dementia sufferers and their carers. It is the first and only book of its kind, and the authoritative text. This title is included in Bloomsbury Professional's Family Law online service.

Retooling for an Aging America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2008-08-27

Total Pages: 316

ISBN-13: 0309131952

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As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs. Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides. Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs.

Chronic Illness Care

Author: Timothy P. Daaleman

Publisher: Springer Nature

Published: 2023

Total Pages: 628

ISBN-13: 3031291719

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The second edition of this popular textbook provides a comprehensive overview to chronic illness care, which is the coordinated, comprehensive and sustained response to chronic diseases and conditions by health care providers, formal and informal caregivers, healthcare systems, and community-based resources. This unique resource uses an ecological framework to frame chronic illness care at multiple levels, and includes sections on individual influences, the role of family and community networks, social and environmental determinants, and health policy. The book also orients how chronic care is provided across the spectrum of health care settings, from home to clinic, from the emergency department to the hospital and from hospitals to residential care facilities. The fully revised and expanded edition of Chronic Illness Care describes the operational frameworks and strategies that are needed to meet the care needs of chronically ill patients, including behavioral health, care management, transitions of care, and health information technology. It also addresses the changing workforce needs in health care and the fiscal models and policies that are associated with chronic care. Several new chapters are included in the second edition and reflect the significant changes that have occurred in health care due to the COVID-19 pandemic. Chapters covering vaccinations, virtual care, and care of COVID-19 associated chronic conditions have been added. The revised textbook builds on the first editions content that covered providing care to special population groups, such as children and adolescents, older adults, and adults with intellectual and developmental disabilities, by including care approaches to adults with severe and persistent mental health disorders, the LGBTQ+ community, incarcerated persons, immigrants and refugees, and military veterans. Finally, chapters on important and emerging topics, such as natural language processing and health inequities and structural racism have also been added.

Already Toast

Author: Kate Washington

Publisher: Beacon Press

Published: 2021-03-16

Total Pages: 226

ISBN-13: 0807011509

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The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Mom Has Alzheimer's

Author: Nancy J. Day

Publisher: Fulton Books, Inc.

Published: 2023-11-20

Total Pages: 199

ISBN-13:

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This is a story about my mom's journey with Alzheimer's and my role as a caregiver. Although I graduated from nursing school and became a nurse practitioner, nothing prepared me for this role! We had many challenges and struggles along the way. Not just my mom, but also me! I have written the story but also have added special sections for caregivers to learn along the way. It offers tips on providing care for various issues such as behavior issues, sleeping issues, eating problems, depression, taking care of bed-bound parents, etc., and also taking care of yourself while caregiving. Caregiving is very hard work! Women who care for Alzheimer's patients are at an increased risk for developing Alzheimer's themselves. Two-thirds of Alzheimer's patients are women! If a wife's husband gets Alzheimer's and she takes care of him, she is at a six times greater risk to develop Alzheimer's herself. I have also included resources for caregivers to find help.

Family Caregiving in Chronic Illness

Author: David E. Biegel

Publisher:

Published: 1991

Total Pages: 332

ISBN-13: 9780608012674

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This book provides a comprehensive analysis of family caregiving for adults who are dependent because of chronic illness. Focusing on five specific diseases - Alzheimer's, cancer, chronic mental illness, heart disease and stroke - the authors present and assess existing research and practice relating to family caregiving.