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Chronic Illness

Author: S. Kay Toombs

Publisher: Indiana University Press

Published: 1995-07-22

Total Pages: 250

ISBN-13: 9780253113559

"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.

Coping with Chronic Illness

Author: Silvia Bonino

Publisher: Routledge

Published: 2020-12-20

Total Pages: 196

ISBN-13: 1000289109

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This valuable book combines psychological theories of health with the lived experience of coping with chronic health conditions, focusing on the "ill person" as an actor of their own development. It draws on perspectives from developmental and health psychology alongside the author’s personal experience of chronic illness. Bonino considers all aspects of living with illness, from issues that impact on everyday functioning such as pain and fatigue, to the rebuilding of identity through meaningful new goals and effective actions, and the development of therapeutic relationships. Psychological theories are interweaved with descriptions of lived encounters to center the experience of the person living alongside illness and provide insightful points of reference that everyone could try to use when facing the challenges of chronic disease in the course of their daily lives. Coping with Chronic Illness is important reading for those living with chronic health conditions, as well as for healthcare professionals looking to gain awareness of the psychological issues caused by living with illness. It is also of interest for postgraduate students of health psychology.

Illness Behavior

Author: Sean McHugh

Publisher: Springer Science & Business Media

Published: 2012-12-06

Total Pages: 421

ISBN-13: 1468452576

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In August, 1985, the 2nd International Conference on Illness Behaviour was held in Toronto, Ontario, Canada. The first International Conference took place one year previous in Adelaide, South Australia, Australia. This book is based on the proceedings of the second conference. The purpose behind this conference was to facilitate the development of a single integrated model to account for illness experience and presentation. A major focus of the conference was to outline methodological issues related to current behaviour research. A multidiscipl~nary approach was emphasized because of the bias that collaborative efforts are likely to be the most successful in achieving greater understanding of illness behaviour. Significant advances in our knowledge are occurring in all areas of the biological and social sciences, albeit more slowly in the latter areas. Marked specialization in each of these areas has lead to greater difficulty in integrating new knowledge with that of other areas and the development of a meaningful cohesive model to which all can relate. Thus there is a major need for forums such as that provided by this conference.

Chronic Illness, Vulnerability and Social Work

Author: Liz Price

Publisher: Routledge

Published: 2015-05-01

Total Pages: 179

ISBN-13: 1136165460

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Whilst the body has recently assumed greater sociological significance, there has been less engagement in social work and social care on the bodily experience of health, illness and disease. This innovative volume redresses the balance by exploring chronic illness and social work, through the specific lens of autoimmunity, engaging in wider debates around vulnerability, resistance and the lived experience of ongoing ill-health. Moving beyond existing conceptualisations of vulnerability as an issue of mental distress, ageing, child protection and poverty, Price and Walker demonstrate the role that society has to play in actively engaging the physical body, rather than working around and through it. The book focuses on auto-immune conditions such as lupus, multiple sclerosis, rheumatoid arthritis and scleroderma. Conditions like these allow for an exploration of the materiality of illness which exacerbates social and economic vulnerability and may precipitate personal and social crises, requiring a variety of interventions and support. The risks and challenges associated with chronic illness include disruptions to a sense of self and identity, altered relationships and the renegotiation of roles and responsibilities in a variety of relationships in addition to an economic impact, with the potential for disruption to employment status and financial insecurity. This text opens up a range of debates around some of the central concerns of the social work profession, including vulnerability, ill-health, and independence. It will be of interest to scholars and students of social work, nursing, disability studies, medicine and the social sciences.

Chronic Illness

Author: Pamala D. Larsen

Publisher: Jones & Bartlett Learning

Published: 2002

Total Pages: 634

ISBN-13: 9780763715700

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Focuses on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes.

Managing Chronic Illness Using the Four-Phase Treatment Approach

Author: Patricia A. Fennell

Publisher: John Wiley & Sons

Published: 2003-10-17

Total Pages: 456

ISBN-13: 0471462772

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A pioneering book to help maximize the quality of life for chronically ill patients Written by a leading authority on chronic illness treatment and management, Managing Chronic Illness Using the Four-Phase Treatment Approach provides evidence-based practice guidelines for clinicians to help their clients with debilitating health problems embrace a new "normal," understand the cyclical nature of their illness, and function at the highest level possible. Patricia Fennell's groundbreaking model for understanding chronic illness identifies and describes four broad phases experienced by the chronically ill: crisis, stabilization, resolution, and integration. Using a broad array of case histories, Fennell vividly illustrates what clients need at each phase and how to assess and respond to them compassionately. Fennell also suggests how clinicians may best use their own changing experiences in their work to help clients transition through the four phases. The goal of the "Four-Phase Model" is to maximize a client's quality of life without offering false hope for a cure, making it an effective treatment strategy for diverse client populations, including people with physiological diseases; patients whose lives are being prolonged by modern medicine; and people who suffer from addiction, post-traumatic stress syndrome, intractable pain, and post-rape and abuse conditions. Complete with detailed treatment protocols for documenting a client's symptoms and quality of life at each phase, Managing Chronic Illness Using the Four-Phase Treatment Approach is a highly practical book for everyone working with chronically ill clients.

The Chronic Illness Experience

Author: Cheri Register

Publisher:

Published: 1999

Total Pages: 368

ISBN-13: 9781568383460

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The Chronic Illness Experience

The Invisible Kingdom

Author: Meghan O'Rourke

Publisher: Penguin

Published: 2023-02-28

Total Pages: 337

ISBN-13: 0399573305

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A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

The Chronic Illness Workbook

Author: Patricia Fennell

Publisher: Albany Health Management Publishing

Published: 2012

Total Pages: 0

ISBN-13: 9780979640711

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THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.

The Psychology Of Chronic Illness

Author: Robert Shuman

Publisher:

Published: 1996-12-09

Total Pages: 248

ISBN-13:

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With the onset of chronic illness, an individual and family's world, previously taken for granted, is often undone. The actual and potential losses from illness impact on family, friends, physicians, therapists, nurses, and others in profound and unexpected ways. Through his own honest, personal account and the testimony of others, Robert Shuman takes us inside the illness experience to help us better grasp the daily inner lives of the ailing person and his or her family. As our aging population lives longer, chronic illness touches more and more of us. Whether as patient or parent, nurse or spouse, colleague or therapist, we need to have greater knowledge and understanding of the intricacies of chronic illness.Robert Shuman maps out the many dimensions of illness and invites the reader to explore its challenging terrain in a way that provides opportunities for self-discovery and reflection. In lyrical prose, he opens up new ways of thinking about the psychology of illness and healing. He suggests, for example, that illness symptoms can have a generative effect on a person's imaginative and creative possibilities, and that the socially despised events of illness and disability offer new ways of being once sought through the work of religion. Drawing on the fields of behavioral and family medicine, medical anthropology and sociology, moral and bioethical philosophies, and family, existential, cognitive, Jungian, and archetypal psychotherapies, among others, The Psychology of Chronic Illness raises provocative questions for the professional caregiver as well as for those living with illness and disability.This book will help anyone touched by illness, personally or professionally, to support those living with chronic illnesses and disabilities; to cope with multiple impacts on work, relationships, social roles, individual dreams, and disappointments; to listen to and voice suffering and fears, grief and anger, questions of values and moral doubts; and to acknowledge loss and mourning as a “common ground” that we all share. This book offerrs specific resources to the caregiver and aids the professional in his or her ethical obligation to give. Moreover, Shuman's voice is one of compassion, reminding us how to hold on to or recover hope, meaning, and morale during times of affliction and distress.