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Talking with Patients about the Personal Impact of Illness

Author: Lenore M. Buckley

Publisher: Radcliffe Publishing

Published: 2008

Total Pages: 164

ISBN-13: 1846192897

This book explores the psychosocial impact of serious illness - its effect on a person's identity and relationships - and the doctor's role in counseling patients. Even the most seasoned physician often feels inadequate when it comes to discussing the personal impact of disability and serious illness with patients. It takes time, attention, and skill. Most physicians who are good at this learn what to say from observations of physicians they respect and the conversations they share with patients over many years of practice. Like everything else in medicine, there is a continuous learning curve. This book offers a beginning. It includes first-hand experiences and reflections on serious illness by physicians and patients, concrete advice on how to initiate discussions of difficult psychosocial issues, topics for organising discussion, suggested readings, and guides for patient interviews.'Much is written about patient-centered care and the patient experience.What sets this book apart is, first, Lenore Buckley's ability to tell stories about her own medical experience. These teaching tales give young physicians a sense of the task that their profession requires of them, while keeping that task within human proportions. Second and complementing that is her excellent compilation of quotations and stories from the memoirs of patients and physicians, especially physicians as patients. 'I hope this empathic, useful collection of materials for teaching and reflection finds its way into medical school curricula, and I hope it is one of those books that physicians return to during years of practice, especially when they sense that the treatment expert is crowding the witness out of the room. Patients need both doctors. Lenore Buckley shows how doctors are able to expect nothing less of themselves' - Arthur W Frank in the Foreword.

Talking with Patients About the Personal Impact of Ilness

Author: Leonore Buckley

Publisher: CRC Press

Published: 2018-04-19

Total Pages: 168

ISBN-13: 1315346761

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How To Break Bad News

Author: Robert Buckman

Publisher: University of Toronto Press

Published: 1992-08-08

Total Pages: 223

ISBN-13: 1487592639

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For many health care professionals and social service providers, the hardest part of the job is breaking bad news. The news may be about a condition that is life-threatening (such as cancer or AIDS), disabling (such as multiple sclerosis or rheumatoid arthritis), or embarrassing (such as genital herpes). To date medical education has done little to train practitioners in coping with such situations. With this guide Robert Buckman and Yvonne Kason provide help. Using plain, intelligible language they outline the basic principles of breaking bad new and present a technique, or protocol, that can be easily learned. It draws on listening and interviewing skills that consider such factors as how much the patient knows and/or wants to know; how to identify the patient's agenda and understanding, and how to respond to his or her feelings about the information. They also discuss reactions of family and friends and of other members of the health care team. Based on Buckman's award-winning training videos and Kason's courses on interviewing skills for medical students, this volume is an indispensable aid for doctors, nurses, psychotherapists, social workers, and all those in related fields.

Remaking Chronic Care in the Age of Health Care Reform

Author: Arnold Birenbaum

Publisher: Bloomsbury Publishing USA

Published: 2011-09-12

Total Pages: 236

ISBN-13: 0313398895

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This revealing book tackles the daunting problem of increasing chronic illness in America, offering fresh ideas for the ways in which the challenge can be successfully managed. Remaking Chronic Care in the Age of Health Care Reform: Changes for Lower Cost, Higher Quality Treatment is nothing less than a blueprint for a new mode of chronic care. It depicts a current system in which there is little financial incentive to furnish coordinated services via appropriate primary care and few penalties for failure to deliver such care. Arguing that the current system is unsustainable, the book documents efforts that have been made to promote better coordination of care through patient-centered medical homes and accountable care organizations. Specifically, the book focuses on linking the ongoing innovations in health care practices with the supports for scaling up innovations found in the Patient Protection and Affordable Care Act. It shows how expanding and improving primary care as the vehicle for care coordination will reduce costs for those with conditions such as arthritis, diabetes, hypertension, or other longstanding disorders, but also makes it clear that incentives have to be realigned if such improved primary care is to become a reality.

The Illness Narratives

Author: Arthur Kleinman

Publisher: Hachette UK

Published: 2020-10-13

Total Pages: 336

ISBN-13: 154167460X

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From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.

Gareth and Lynette Lancelot and Elaine the Passing of Arthur

Author: Houghton Mifflin Company

Publisher: Wentworth Press

Published: 2019-03-16

Total Pages: 132

ISBN-13: 9781010370277

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This work has been selected by scholars as being culturally important, and is part of the knowledge base of civilization as we know it. This work was reproduced from the original artifact, and remains as true to the original work as possible. Therefore, you will see the original copyright references, library stamps (as most of these works have been housed in our most important libraries around the world), and other notations in the work. This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work. As a reproduction of a historical artifact, this work may contain missing or blurred pages, poor pictures, errant marks, etc. Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. We appreciate your support of the preservation process, and thank you for being an important part of keeping this knowledge alive and relevant.

Psychological and Cognitive Impact of Critical Illness

Author: O. Joseph Bienvenu

Publisher: Oxford University Press

Published: 2017

Total Pages: 241

ISBN-13: 0199398690

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Personal journeys through understanding the psychological and cognitive problems faced by critical illness survivors / Christina Jones, Peter Gibb, and Ramona O. Hopkins -- Delirium in critically ill patients / Mark van den Boogaard and Paul Rood -- Critical illness and long-term cognitive impairment / Ramona O. Hopkins, PhD, Maria E. Carlo, MD, James C. Jackson, PsyD -- Psychological impact of critical illness / O. Joseph Bienvenu and Christina Jones -- Rehabilitation psychology insights for the treatment of critical illness survivors / Jennifer E. Jutte, James C. Jackson, and Ramona O. Hopkins -- Prevention and treatment of posttraumatic stress and depressive phenomena in critical illness survivors / Christina Jones and O. Joseph Bienvenu -- Supporting pediatric patients and their families during and after intensive care treatment / Gillian Coville -- Family response to critical illness / Judy E. Davidson and Giroa Netzer

The Invisible Kingdom

Author: Meghan O'Rourke

Publisher: Penguin

Published: 2023-02-28

Total Pages: 337

ISBN-13: 0399573305

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A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

The Nature of Suffering and the Goals of Medicine

Author: Eric J. Cassell

Publisher: Oxford University Press

Published: 2004-03-25

Total Pages: 336

ISBN-13: 0199748004

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This is a revised and expanded edtion of a classic in palliative medicine, originally published in 1991. With three added chapters and a new preface summarizing our progress in the area of pain management, this is a must-hve for those in palliative medicine and hospice care. The obligation of physicians to relieve human suffering stretches back into antiquity. But what exactly, is suffering? One patient with metastic cancer of the stomach, from which he knew he would shortly die, said he was not suffering. Another, someone who had been operated on for a mior problem--in little pain and not seemingly distressed--said that even coming into the hospital had been a source of pain and not suffering. With such varied responses to the problem of suffering, inevitable questions arise. Is it the doctor's responsibility to treat the disease or the patient? And what is the relationship between suffering and the goals of medicine? According to Dr. Eric Cassell, these are crucial questions, but unfortunately, have remained only queries void of adequate solutions. It is time for the sick person, Cassell believes, to be not merely an important concern for physicians but the central focus of medicine. With this in mind, Cassell argues for an understanding of what changes should be made in order to successfully treat the sick while alleviating suffering, and how to actually go about making these changes with the methods and training techniques firmly rooted in the doctor's relationship with the patient. Dr. Cassell offers an incisive critique of the approach of modern medicine. Drawing on a number of evocative patient narratives, he writes that the goal of medicine must be to treat an individual's suffering, and not just the disease. In addition, Cassell's thoughtful and incisive argument will appeal to psychologists and psychiatrists interested in the nature of pain and suffering.

Dying Well

Author: Ira Byock

Publisher: Penguin

Published: 1998-03-01

Total Pages: 321

ISBN-13: 110150028X

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From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.