Speaking Honestly with Sick and Dying Children and Adolescents

Speaking Honestly with Sick and Dying Children and Adolescents PDF

Author: Dietrich Niethammer

Publisher: JHU Press

Published: 2012-06

Total Pages: 236

ISBN-13: 1421404567

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Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.

Befriending the North Wind

Befriending the North Wind PDF

Author: Robyn Boeré

Publisher: Augsburg Fortress Publishers

Published: 2023

Total Pages: 244

ISBN-13: 1506481833

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Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.

Understanding Death and Dying

Understanding Death and Dying PDF

Author: Frank E. Eyetsemitan

Publisher: SAGE Publications

Published: 2020-07-16

Total Pages: 549

ISBN-13: 1506376215

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Understanding Death and Dying teaches students about death, dying, bereavement, and afterlife beliefs by asking them to apply this content to their lives and to the world around them. Students see differing cultural experiences discussed in context with key theories and research. The text’s pedagogy delivers relevant multi- and cross-cultural applications and connections across topics. This helps students evaluate their personal assumptions and appreciate how the content applies to their own current and future roles as individuals, family members, work colleagues, and as part of a community. The text simultaneously challenges learners to consider their own perspectives and to think critically about the parallels between their own lives and different cultures. Included with this title: The password-protected Instructor Resource Site (formally known as SAGE Edge) offers access to all text-specific resources, including a test bank and editable, chapter-specific PowerPoint® slides.

Integrating Therapeutic Play Into Nursing and Allied Health Practice

Integrating Therapeutic Play Into Nursing and Allied Health Practice PDF

Author: Judi A. Parson

Publisher: Springer Nature

Published: 2023-01-01

Total Pages: 214

ISBN-13: 3031169387

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This book helps support developmentally sensitive nursing and allied health practice by integrating the therapeutic powers of play into child and adolescent health care service provision. It is designed to link play, child development, neuroscience, biopsychosocial and attachment theories with the biomedical model of health. Nurses and allied health professionals work with children aged between 0-18 years and with diverse childhood illnesses, injuries, diseases, disorders, and conditions, and are therefore in a prime position to understand and support children through potentially painful and traumatic health care experiences. Understanding of the role of play and the application of the therapeutic powers of play in communicating with children and families has the potential to significantly optimise paediatric care. The theory and play based strategies, tools and techniques presented in this book assist nurses and health care professionals to engage with children in an age-appropriate manner and ‘speak’ with children through their natural language of play, to enhance comprehension, coping, resiliency, and healing. Play is recognised as a sequentially developing ability and can be aligned with the child’s age and stage of life. Play based approaches can be placed on a continuum from fully child led or non-directive play to adult facilitated educative play. Medical information can be tailored according to the various points along this continuum to inform clinical reasoning and to help children prepare for procedures, recover from medical interventions and / or make sense of their diagnosis. Whilst this book is directed at nurses and allied health professionals who work with children and their families, it may also be a valuable resource for medical and other professionals in community or educational settings to work systemically as a team. The book takes the reader on a journey to illustrate various professional and therapeutic roles in how to playfully engage children through a range of case vignettes.

Living in Death’s Shadow

Living in Death’s Shadow PDF

Author: Emily K. Abel

Publisher: JHU Press

Published: 2017-02-28

Total Pages: 181

ISBN-13: 1421421852

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Challenging assumptions about caregiving for those dying of chronic illness. What is it like to live with—and love—someone whose death, while delayed, is nevertheless foretold? In Living in Death’s Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member’s extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles. The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease. The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.

What Do We Tell the Children?

What Do We Tell the Children? PDF

Author: Joseph M. Primo

Publisher: Abingdon Press

Published: 2013-09-17

Total Pages:

ISBN-13: 1426775156

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One out of seven children will lose a parent before they are 20. The statistics are sobering, but they are also a call for preparedness. However, pastors and counselors of all types are often at a loss when dealing with a grieving child. Talking to adults about death and grief is difficult; it's all the more challenging to talk to children and teens. The stakes are high: grieving children are high-risk for substance abuse, promiscuity, depression, isolation, and suicide. Yet, despite this, most of these kids grow up to be normal or exceptional adults. But their chance to become healthy adults increases with the support of a loving community. Supporting grieving children requires intentionality, open communication, and patience. Rather than avoid all conversations on death or pretend like it never happened, normalizing grief and offering support requires us to be in-tune with kids through dialogue as they grapple with questions of “how” and “why.” When listening to children in grief, we often have to embrace the mystery, offer love and compassion, and stick with the basics. The author says, "We don’t have to answer the why and how for them, but we can assure our children that God is with us as we suffer. We can do so by doing good for others and pointing out all of those moments when someone has done something good for us. I believe that most of the time that’s as far as we will get, and that is okay."

When Treatment Fails

When Treatment Fails PDF

Author: David J. Bearison

Publisher: Oxford University Press, USA

Published: 2006

Total Pages: 330

ISBN-13: 9780195156126

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Medical care of the terminally ill is one of the most emotionally fraught and controversial issues before the public today. As medicine advances and technologies develop, end-of-life care becomes more individualized and uncertain, guided less by science and more by values and beliefs. The crux of the controversy is when to withhold or withdraw curative treatments--when is enough, enough? Political debates rage about when treatment is no longer effective; difficult cases are contested in courts; and the media devour the most sensational aspects of end-of-life care. In all this excitement and controversy, what is sadly overlooked is the extreme pressure that care of the terminally ill puts on medical staff as they deal with patients and their families and make life-or-death decisions. That pressure--the psychological strain and continuing uncertainties--is magnified when the patients are children. David Bearison looks at this controversial issue from the perspective of the medical staff caring for dying children. Not just doctors, but nurses and counselors as well. By capturing their stories--as no other book has, Bearison is able to move beyond broad, abstract ideas about end-of-life care to convey the situated contexts of such care, including the complications, disagreements, frustrations, confusions, and unexpected setbacks. In addition to a discussion of questions surrounding whether to withhold or withdraw curative treatments, When Treatment Fails explores the crucial concerns of those medical practitioners who care for dying children: education and training, relation with one another, communicating with patients and families, and finally, coping and moving on. Ultimately, the threads connecting these themes are the great costs and rewards of this difficult work, and the lessons that can be drawn from the nitty-gritty experiences of medical practitioners who struggle to find the balance between trying to defeat death and trying to provide comfort.

Take Up Thy Bed and Walk

Take Up Thy Bed and Walk PDF

Author: Lois Keith

Publisher: Taylor & Francis

Published: 2001

Total Pages: 288

ISBN-13: 9780415937399

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Heidi, The Secret Garden, and Pollyanna are all classic "girls' books, " featuring a miracle cure of an invalid character who literally gets up and walks away from illness or paralysis. Such stories were common in Victorian novels and they implicitly conveyed the idea that disability and physical suffering were punishment for wrongdoing: unruly girls could not enter womanhood unless they were tamed, and an accident was the perfect plot device for this transformation. Other characters, like Helen Burns in Jane Eyre or Beth in Little Women, were just too good to live, and died so that another character could be redeemed by their example. Lois Keith points out in this study that the temptation to either cure or kill off disabled characters has surprising tenacity. The widespread belief that a disabled life isn't a full life and that patients can cure themselves through force of will endures to the present day. In Take Up Thy Bed & Walk, Lois Keith brings her lively and observant eye to the classic books of childhood from Jane Eyre, Heidi, and Pollyanna, to modern American classics such as Laura Ingalls Wilder's Little House on the Prairie and Judy Blume's Deenie. Keith explores the recurring images of impairment and ill health in literature and asks the reader to reconsider the messages they send to a devoted young audience. This book is also a testament to the singular passion with which these books are read by younger readers and reminds us of the intensity of our own reading experience as children.

The Child That Books Built

The Child That Books Built PDF

Author: Francis Spufford

Publisher: Macmillan

Published: 2003-12

Total Pages: 228

ISBN-13: 9780312421847

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In this extended love letter to children's books, and the wonders they perform, Spufford goes back to his earliest encounters with books, exploring such beloved classics as "The Wind in the Willows, The Little House on the Prairie," and the Narnia chronicles.

Fundamentals Davis Essential Nursing Content + Practice Questions

Fundamentals Davis Essential Nursing Content + Practice Questions PDF

Author: Patricia M Nugent

Publisher: F.A. Davis

Published: 2017-04-20

Total Pages: 962

ISBN-13: 0803669577

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Up-to-date with the NCLEX-RN® 2016 Test Plan. Too much information? Too little time? Here’s everything you need to succeed in your fundamentals of nursing course and prepare for course exams and the NCLEX®. Succinct content review in outline format focus on must-know information, while case studies and NCLEX-style questions develop your ability to apply your knowledge in simulated clinical situations. You’ll also find proven techniques and tips to help you study more effectively, learn how to approach different types of questions, and improve your critical-thinking skills.