Secondary Data Sources for Public Health

Secondary Data Sources for Public Health PDF

Author: Sarah Boslaugh

Publisher: Cambridge University Press

Published: 2007-04-09

Total Pages: 164

ISBN-13: 1139464477

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Secondary data play an increasingly important role in epidemiology and public health research and practice; examples of secondary data sources include national surveys such as the BRFSS and NHIS, claims data for the Medicare and Medicaid systems, and public vital statistics records. Although a wealth of secondary data is available, it is not always easy to locate and access appropriate data to address a research or policy question. This practical guide circumvents these difficulties by providing an introduction to secondary data and issues specific to its management and analysis, followed by an enumeration of major sources of secondary data in the United States. Entries for each data source include the principal focus of the data, years for which it is available, history and methodology of the data collection process, and information about how to access the data and supporting materials, including relevant details about file structure and format.

Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes PDF

Author: Agency for Healthcare Research and Quality/AHRQ

Publisher: Government Printing Office

Published: 2014-04-01

Total Pages: 396

ISBN-13: 1587634333

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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases

A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases PDF

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2011-08-26

Total Pages: 200

ISBN-13: 0309212197

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Chronic diseases are common and costly, yet they are also among the most preventable health problems. Comprehensive and accurate disease surveillance systems are needed to implement successful efforts which will reduce the burden of chronic diseases on the U.S. population. A number of sources of surveillance data--including population surveys, cohort studies, disease registries, administrative health data, and vital statistics--contribute critical information about chronic disease. But no central surveillance system provides the information needed to analyze how chronic disease impacts the U.S. population, to identify public health priorities, or to track the progress of preventive efforts. A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases outlines a conceptual framework for building a national chronic disease surveillance system focused primarily on cardiovascular and chronic lung diseases. This system should be capable of providing data on disparities in incidence and prevalence of the diseases by race, ethnicity, socioeconomic status, and geographic region, along with data on disease risk factors, clinical care delivery, and functional health outcomes. This coordinated surveillance system is needed to integrate and expand existing information across the multiple levels of decision making in order to generate actionable, timely knowledge for a range of stakeholders at the local, state or regional, and national levels. The recommendations presented in A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases focus on data collection, resource allocation, monitoring activities, and implementation. The report also recommends that systems evolve along with new knowledge about emerging risk factors, advancing technologies, and new understanding of the basis for disease. This report will inform decision-making among federal health agencies, especially the Department of Health and Human Services; public health and clinical practitioners; non-governmental organizations; and policy makers, among others.

Public Health Research Methods

Public Health Research Methods PDF

Author: Greg Guest

Publisher: SAGE

Published: 2014-03-03

Total Pages: 833

ISBN-13: 1452241333

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Providing a comprehensive foundation for planning, executing, and monitoring public health research of all types, this book goes beyond traditional epidemiologic research designs to cover technology-based approaches emerging in the new public health landscape.

Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide

Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide PDF

Author: Agency for Health Care Research and Quality (U.S.)

Publisher: Government Printing Office

Published: 2013-02-21

Total Pages: 204

ISBN-13: 1587634236

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This User’s Guide is a resource for investigators and stakeholders who develop and review observational comparative effectiveness research protocols. It explains how to (1) identify key considerations and best practices for research design; (2) build a protocol based on these standards and best practices; and (3) judge the adequacy and completeness of a protocol. Eleven chapters cover all aspects of research design, including: developing study objectives, defining and refining study questions, addressing the heterogeneity of treatment effect, characterizing exposure, selecting a comparator, defining and measuring outcomes, and identifying optimal data sources. Checklists of guidance and key considerations for protocols are provided at the end of each chapter. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews. More more information, please consult the Agency website: www.effectivehealthcare.ahrq.gov)

Secondary Analysis of Electronic Health Records

Secondary Analysis of Electronic Health Records PDF

Author: MIT Critical Data

Publisher: Springer

Published: 2016-09-09

Total Pages: 427

ISBN-13: 3319437429

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This book trains the next generation of scientists representing different disciplines to leverage the data generated during routine patient care. It formulates a more complete lexicon of evidence-based recommendations and support shared, ethical decision making by doctors with their patients. Diagnostic and therapeutic technologies continue to evolve rapidly, and both individual practitioners and clinical teams face increasingly complex ethical decisions. Unfortunately, the current state of medical knowledge does not provide the guidance to make the majority of clinical decisions on the basis of evidence. The present research infrastructure is inefficient and frequently produces unreliable results that cannot be replicated. Even randomized controlled trials (RCTs), the traditional gold standards of the research reliability hierarchy, are not without limitations. They can be costly, labor intensive, and slow, and can return results that are seldom generalizable to every patient population. Furthermore, many pertinent but unresolved clinical and medical systems issues do not seem to have attracted the interest of the research enterprise, which has come to focus instead on cellular and molecular investigations and single-agent (e.g., a drug or device) effects. For clinicians, the end result is a bit of a “data desert” when it comes to making decisions. The new research infrastructure proposed in this book will help the medical profession to make ethically sound and well informed decisions for their patients.

Public Health Informatics and Information Systems

Public Health Informatics and Information Systems PDF

Author: J.A. Magnuson

Publisher: Springer Nature

Published: 2020-07-17

Total Pages: 515

ISBN-13: 3030412156

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This 3rd edition of a classic textbook examines the context and background of public health informatics, explores the technology and science underlying the field, discusses challenges and emerging solutions, reviews many key public health information systems, and includes practical, case-based studies to guide the reader through the topic. The editors have expanded the text into new areas that have become important since publication of the previous two editions due to changing technologies and needs in the field, as well as updating and augmenting much of the core content. The book contains learning objectives, overviews, future directions, and review questions to assist readers to engage with this vast topic. The Editors and their team of well-known contributors have built upon the foundation established by the previous editions to provide the reader with a comprehensive and forward-looking review of public health informatics. The breadth of material in Public Health Informatics and Information Systems, 3rd edition makes it suitable for both undergraduate and graduate coursework in public health informatics, enabling instructors to select chapters that best fit their students’ needs.

Evidence-based Public Health

Evidence-based Public Health PDF

Author: Ross C. Brownson

Publisher: Oxford University Press

Published: 2017-06-15

Total Pages: 369

ISBN-13: 0190620935

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The acclaimed textbook for navigating the practice and challenges of public health, now updated and completely revised ""It should be recommended or assigned to all students in public health.""--American Journal of Epidemiology This fully revised and updated edition Evidence-Based Public Health offers an essential primer on how to choose, carry out, and evaluate evidence-based programs and policies in public health settings. It addresses not only how to locate and utilize scientific evidence, but also how to implement and evaluate interventions in a way that generates new evidence

Needs Assessment in Public Health

Needs Assessment in Public Health PDF

Author: Donna J. Petersen

Publisher: Springer Science & Business Media

Published: 2007-05-08

Total Pages: 142

ISBN-13: 030647610X

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This volume is for students and practitioners interested in improving their understanding and skills in the area of needs assessment. The text follows the typical sequence of an actual needs assessment process. Case studies are used to illustrate conceptualization of the task through the application of needs-based data to effective public health solutions. Examples are drawn from myriad public health efforts, recognizing that not all public health sector agencies bear direct responsibility for all activities that could be considered part of public health.