Author: National Organization for Rare Disorders
Publisher: Sedgwick Press
Published: 2002
Total Pages: 0
ISBN-13: 9781891482182
DOWNLOAD EBOOK →This reference for lay readers and health care professionals presents information on disorders affecting fewer than 200,000 people in the U.S. at any one time. Each of the more than 1,100 entries describes the characteristics, causes, and symptoms of a particular disorder. The extensively cross-referenced volume also features profiles of 680 disease specific organizations as well as 629 umbrella organizations and 77 government agencies. Annotation copyrighted by Book News, Inc., Portland, OR
Author: National Organization for Rare Disorders
Publisher: Lippincott Williams & Wilkins
Published: 2003
Total Pages: 982
ISBN-13: 9780781730631
DOWNLOAD EBOOK →NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.
Author: Grey House Publishing
Publisher: Grey House Pub
Published: 1998-04-01
Total Pages: 726
ISBN-13: 9781891482038
DOWNLOAD EBOOK →Author: Laura Mars
Publisher: Sedgwick Press
Published: 2002-03-01
Total Pages: 800
ISBN-13: 9781891482199
DOWNLOAD EBOOK →Author: Grey House Publishing, Inc
Publisher: Sedgwick Press
Published: 2006-07
Total Pages: 0
ISBN-13: 9781592371235
DOWNLOAD EBOOK →Author: Institute of Medicine
Publisher: National Academies Press
Published: 2011-04-03
Total Pages: 442
ISBN-13: 0309158060
DOWNLOAD EBOOK →Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Author: Jess G. Thoene
Publisher: Dowden Publishing
Published: 1995
Total Pages: 1056
ISBN-13:
DOWNLOAD EBOOK →This classic reference, now with almost 900 disease descriptions, is edited by nationally known pediatrician Jess G. Thoene, M.D. & provides a quick, organized approach to identifying puzzling & unusual symptoms, giving patients the opportunity for early diagnosis & treatment. Special features include: * A full color atlas of visual clues, cross referenced to disease listings. * Thirteen separate specialty sections with an expert overview to introduce each section. Eminent clinicians from the outstanding research centers in rare diseases give you the current status of research & practical approaches to diagnosis & therapy of the rare diseases in that specialty. * Full reference to more than 250 orphan drugs. Each drug is cross referenced to the appropriate disease description. * Clear language for the Layperson. Though written for physicians, the descriptions of diseases, symptoms & treatments are clear & understandable for patients, educators & others outside the medical profession. Each disease description provides symptomatology, etiology, affected population & a comparison of related disorders. Each disease description contains a list of other resources to consult: voluntary agencies, units of the National Institutes of Health, research centers around the country, etc. Addresses & phone numbers are provided in a central reference. Library Journal: "...PHYSICIAN'S GUIDE...is recommended for medical collections & public libraries with consumer health collections."
Author: Henry A. Rose
Publisher: Unicol, Inc.
Published: 2005
Total Pages: 136
ISBN-13: 9781880973431
DOWNLOAD EBOOK →From the publishers of the Hospital Telephone Directory comes this guide to almost 1,000 health information toll-free numbers, plus addresses, web sites, and hours of operation. Includes a Spanish translation of organization names and a quick reference index.
Author: Tarun Weeramanthri
Publisher: Frontiers Media SA
Published: 2018-06-25
Total Pages: 149
ISBN-13: 2889455017
DOWNLOAD EBOOK →Precision Public Health is a new and rapidly evolving field, that examines the application of new technologies to public health policy and practice. It draws on a broad range of disciplines including genomics, spatial data, data linkage, epidemiology, health informatics, big data, predictive analytics and communications. The hope is that these new technologies will strengthen preventive health, improve access to health care, and reach disadvantaged populations in all areas of the world. But what are the downsides and what are the risks, and how can we ensure the benefits flow to those population groups most in need, rather than simply to those individuals who can afford to pay? This is the first collection of theoretical frameworks, analyses of empirical data, and case studies to be assembled on this topic, published to stimulate debate and promote collaborative work.