Patient Reported Outcome Measures in Rheumatic Diseases

Patient Reported Outcome Measures in Rheumatic Diseases PDF

Author: Yasser El Miedany

Publisher: Springer

Published: 2016-09-14

Total Pages: 450

ISBN-13: 3319328514

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This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Patient Reported Outcomes in Rheumatic Diseases, An Issue of Rheumatic Disease Clinics of North America, E-Book

Patient Reported Outcomes in Rheumatic Diseases, An Issue of Rheumatic Disease Clinics of North America, E-Book PDF

Author: Jennifer L. Barton

Publisher: Elsevier Health Sciences

Published: 2016-05-27

Total Pages: 225

ISBN-13: 0323445241

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This issue is devoted to patient reported outcomes and their impact in the study of rheumatic diseases and the authors will also discuss PROs and vulnerable populations with rheumatic disease; technology, electronic health records and PROs: past, present and future; the promise of PROMIS – a uniform approach to PROs across rheumatic diseases, quality measures and PROs and how they relate and the importance of PROs in delivering quality care in the rheumatic diseases, and many more exciting articles.

Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes PDF

Author: Agency for Healthcare Research and Quality/AHRQ

Publisher: Government Printing Office

Published: 2014-04-01

Total Pages: 396

ISBN-13: 1587634333

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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Getting the Most Out of PROMs

Getting the Most Out of PROMs PDF

Author: N. J. Devlin

Publisher:

Published: 2010

Total Pages: 83

ISBN-13: 9781857175912

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Patient-reported outcome measures (PROMs) use a series of structured questions that ask patients about their health from their point of view, with the aim of improving decision-making at all levels of the NHS. This report looks at the ways in which PROMs data can be used.

Rheumatology E-Book

Rheumatology E-Book PDF

Author: Krysia Dziedzic

Publisher: Elsevier Health Sciences

Published: 2010-02-22

Total Pages: 376

ISBN-13: 0702050652

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Rheumatology is an indispensable resource for physiotherapists, occupational therapists and other health professionals, offering practical approaches to the treatment and management of rheumatic musculoskeletal conditions. The text focuses on applying evidence-based understanding of these conditions to clinical context. The specific disease chapters cover: incidence and prevalence of the condition; clinical presentation and diagnosis; red flags; clinical assessment; important first treatments, early intermediate and long term management; prognosis and long term outcomes. Supporting case histories of increasing complexity and study activities illustrate the clinical relevance of the treatment and management approaches. • Multidisciplinary team approach • Practical solutions to management of conditions supported by the latest research • Case histories of increasing complexity consolidate understanding and develop clinical reasoning • Highlighted boxes throughout contain study tasks and key messages

Patient-Reported Outcomes in Performance Measurement

Patient-Reported Outcomes in Performance Measurement PDF

Author: David Cella

Publisher: RTI Press

Published: 2015-09-17

Total Pages: 97

ISBN-13: 193483114X

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Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

Implementation Science

Implementation Science PDF

Author: Frances Rapport

Publisher: Taylor & Francis

Published: 2022-06-07

Total Pages: 343

ISBN-13: 1000583457

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This accessible textbook introduces a wide spectrum of ideas, approaches, and examples that make up the emerging field of implementation science, including implementation theory, processes and methods, data collection and analysis, brokering interest on the ground, and sustainable implementation. Containing over 60 concise essays, each addressing the thorny problem of how we can make care more evidence-informed, this book looks at how implementation science should be defined, how it can be conducted, and how it is assessed. It offers vital insight into how research findings that are derived from healthcare contexts can help make sense of service delivery and patient encounters. Each entry concentrates on an important concept and examines the idea’s evidence base, root causes and effects, ideas and applications, and methodologies and methods. Revealing a very human side to caregiving, but also tackling its more complex and technological aspects, the contributors draw on real-life healthcare examples to look both at why things go right in introducing a new intervention and at what can go wrong. Implementation Science: The Key Concepts provides a toolbox of rich, contemporary thought from leading international thinkers, clearly and succinctly delivered. This comprehensive and enlightening range of ideas and examples brought together in one place is essential reading for all students, researchers, and practitioners with an interest in translating knowledge into practice in healthcare.

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