Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome PDF

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-16

Total Pages: 251

ISBN-13: 0309316928

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Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

ME/CFS

ME/CFS PDF

Author: Kenneth J. Friedman

Publisher: Mdpi AG

Published: 2022-01-28

Total Pages: 248

ISBN-13: 9783036524399

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"ME/CFS: Causes, Clinical Features and Diagnosis" addresses the early stages of ME/CFS and underlying predisposing factors. It considers the plight of the individual patient, and also the impact of the illness on society as a whole, which is considerable, in terms of both costs and social disruption. Patients and their families and carers frequently experience discrimination and difficulties accessing care. This volume will be of particular interest to those undertaking scientific research and those providing clinical care for ME/CFS patients, as well as to social policy analysts, policy makers and governments, and specialists in social research and medical education. There is a major focus on shortcomings in terms of medical education, resulting in considerable gaps in knowledge and understanding of the condition among many doctors. International comparisons indicate that these problems are encountered in many countries. This is particularly topical at a time when Long Covid-19 has moved post-viral syndromes to the forefront of the political agenda, and confronted society with new challenges in this area on a hitherto unprecedented scale. The volume addresses the many points of similarity between Long Covid-19 and ME/CFS. Mitigation of the illness is also addressed, through espousal of a more patient-centred approach to care, and through consideration of the scope for prevention. Sixty-nine authors from seventeen European countries, and from Canada and the USA have contributed to this volume, which is a truly international collaboration.

Pediatric Chronic Fatigue Syndrome

Pediatric Chronic Fatigue Syndrome PDF

Author: Kenny De Meirleir

Publisher: CRC Press

Published: 2007-02-07

Total Pages: 146

ISBN-13: 9780789035325

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Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.

Fighting Fatigue

Fighting Fatigue PDF

Author: Sue Pemberton

Publisher: Hammersmith Press

Published: 2009

Total Pages: 237

ISBN-13: 9781905140282

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This practical manual comes from a nationally recognised centre for the condition and is jointly written by health professionals and their patients. They give straightforward and specifci expert advice, accompanied by real life stories, on managing different aspects of everyday life that can affect energy and they show how to put this advice into practice. They understand the way fatigue affects concentration and therefore break their guidance into easy to follow steps that can be worked through at the reader's own pace.

Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition

Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition PDF

Author: Byron Hyde MD

Publisher: Lulu.com

Published: 2010

Total Pages: 148

ISBN-13: 055732517X

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A few notes on this NEW revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook:"Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with CFS as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything. The original concepts of searching for occult disease are relevant to patients today with CFS, ME and other fatiguing illnesses. Furthermore, because you do not find pathology does not mean there is none."- Byron Hyde

An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME)

An Evocative Autoethnography of Living Alongside Myalgic Encephalomyelitis (ME) PDF

Author: Orlagh Farrell Delaney

Publisher: Cambridge Scholars Publishing

Published: 2021-07-30

Total Pages: 277

ISBN-13: 1527573281

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This ground-breaking book explores and explains the day-to-day realities of living long-term with Myalgic Encephalomyelitis (ME). ME is an acquired complex disorder characterised by a variety of symptoms affecting multiple systems of the body. Marked fatigue and weakness, sickness, cognitive dysfunction and symptom flare-up can follow any physical or cognitive exertion. It is estimated that there are 17-24 million sufferers worldwide. The author has lived with moderately severe ME for the last 18 years. Utilising autoethnography as a methodology and drawing on multidisciplinary social science theory, the book tells the story of the author’s own lived experiences of the illness, and how she sought to reimagine a ‘self’ or a life living alongside the illness, that could still be considered a ‘good life’. This autoethnographic book is beautifully and evocatively written. It is a work of scholarship that will be highly accessible to academic and other readers. It is also a comprehensive introduction to autoethnography as a methodology, but it is much more. The images and poetry complement the narrative discussion, and are exemplary as part of an approach that integrates creative work with academic argument. It illuminates the struggles of living with ME and how there can be sanctuary.