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Lewy Body Dementia: Information for Patients, Families, and Professionals

Author: U.S. Department of Health and Human Services

Publisher:

Published: 2016-02-01

Total Pages: 44

ISBN-13: 9781523801794

A low-cost print edition of a government document available online. Lewy body dementia is a complex disorder characterized by progressive cognitive decline and problems with movement, behavior, and mood. It is one of the most common causes of dementia, after Alzheimer's disease and vascular disease. This publication is meant to help people with Lewy body dementia, their families, and professionals learn about this disease and resources for coping. It explains what is known about the different types of Lewy body dementia and how they are diagnosed. Information about the treatment and management of this disease, with practical advice for both people with Lewy body dementia and their caregivers is provided. Sources of additional information are included.

Lewy Body Dementia: Information for Patients, Families, and Professionals (Revised June 2018)

Author: U.S. Department of Health and Human Services

Publisher: Lulu.com

Published: 2019-04-13

Total Pages: 44

ISBN-13: 0359588247

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Lewy body dementia (LBD) is a complex and challenging brain disorder. It is complex because it affects many parts of the brain in ways that scientists are trying to understand more fully. It is challenging because its many possible symptoms make it hard to do everyday tasks that once came easily. Although less known than its ?cousins? Alzheimer's disease and Parkinson's disease, LBD is not a rare disorder. More than 1 million Americans, most of them older adults, are affected by its disabling changes in the ability to think and move. As researchers seek better ways to treat LBD?and ultimately to find a cure?people with LBD and their families struggle to get an accurate diagnosis, find the best treatment, and manage at home.

A Caregiver's Guide to Lewy Body Dementia

Author: Helen Buell Whitworth, MS, BSN

Publisher: Demos Medical Publishing

Published: 2010-10-20

Total Pages: 314

ISBN-13: 1935281445

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Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is. A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms. This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.

2023 Lewy Body Dementia - Information for Patients, Families, and Professionals

Author: National Institutes of Health

Publisher:

Published: 2024-05-10

Total Pages: 0

ISBN-13: 9781998428298

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Printed in color. Lewy body dementia (LBD) is a complex and challenging brain disorder. LBD is characterized by the presence of Lewy bodies in the brain and cognitive decline that worsens over time. LBD also affects other parts of the body and bodily functions in ways that scientists are trying to understand more fully. LBD's many possible symptoms make it hard to do everyday tasks that once came easily. Although less is known about LBD than other forms of dementia, it is not a rare disorder. LBD has two forms - dementia with Lewy bodies and Parkinson's disease dementia. Although they have some differences, the two forms are related. Most people living with either form of the disorder are older adults, and they experience disabling changes in their ability to think and move due to the disorder. There is currently no cure for LBD. While researchers seek better ways to treat and cure the disorder, people with LBD and their families continue to face challenges to get an accurate diagnosis, find the best treatments, and manage at home and in their communities. This booklet is meant to help people living with LBD, their families, caregivers, and professionals learn more about the disease and find resources for coping. It explains what is known about the different forms of LBD and how they are diagnosed. Most importantly, it describes how to treat and manage this difficult disease, with practical advice for both people with LBD and their caregivers. A list of resources begins on page 46.

Dementia with Lewy Bodies

Author: John O'Brien

Publisher: CRC Press

Published: 2005-11-29

Total Pages: 286

ISBN-13: 0203313909

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Filling a noticeable gap in the market for a new text solely focused on Dementia with Lewy Bodies, this book discusses cutting-edge topics covering the condition from diagnosis to management, as well as what is known about the neurobiological changes involved. With huge progress having been made over the last decade in terms of the disorder

Dancing with Lewy

Author: Nancy R. Poland

Publisher: Morgan James Publishing

Published: 2020-11-03

Total Pages: 170

ISBN-13: 1631951289

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A woman recounts dementia’s toll on her family and shares lessons she learned that can provide help and hope to caregivers tending to their own loved ones. Within Dancing with Lewy, readers meet Lee and Nancy. Lee was born into a large farming family just before the Great Depression. He was a World War II Veteran, self-made businessman, artist, poet, and a man who would give a stranger his last nickel. Lee’s third daughter, Nancy, is practical, organized, pragmatic, a writer, and equals her father in a passion for life. Nancy was determined to take the helm when Lee’s mind began “dancing” with Lewy body dementia even though he resolved to remain independent while his mind slipped away. Within Dancing with Lewy, readers also meet God as the one who carried the family through this storm and offered grace to the weariness of the family. This memoir is written through Nancy’s eyes while original poetry by Lee is woven throughout to provide readers a glimpse into his outlook to life. In Part I of Dancing with Lewy,Nancy revisits Lee’s young life, her own years growing up with her dad, and the toll dementia took on their family. She shares the pain of grief when her mom died of cancer and her dad became even more confused. In Part II, she shares the lessons she learned along the way and offers hope for caregivers tending to their loved one(s) who have a debilitating illness. Nancy offers practical advice for caregivers such as how to: Get legal documents in order Find community resources Choose a nursing home and partner with the staff Treat their loved one with respect and dignity

Dementia with Lewy Body and Parkinson's Disease Patients

Author: J. Eric Ahlskog

Publisher: Oxford University Press

Published: 2013-09-19

Total Pages: 282

ISBN-13: 0199977569

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Dementia implies impaired thinking and memory, which develops in most people with Parkinson's disease if they live long enough. A closely related condition is Dementia with Lewy Bodies, which is the second leading cause of dementia. This book addresses these Lewy body conditions, with descriptions of diagnosis, symptoms, and current scientific understanding.

Lewy Body Dementia Survival &Me

Author: Kevin Quaid

Publisher:

Published: 2018-06-19

Total Pages: 208

ISBN-13: 9781720495758

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Kevin Quaid author of this book was diagnosed with Lewy Body Dementia when he was 53 years old having been diagnosed with Parkinson's Disease two years earlier, however he started to show symptoms of Parkinson's three years before that. This story takes a look at his life, the highs and lows and sometimes his struggle with life itself.This book then leads into day to day living with this horrible disease Lewy Body Dementia, not only from Kevin's point of view as a patient but also how it affects his family and how his wife copes with being put in the role of a carer.There are some wonderful practical and helpful tips on how to make life a little easier for everyone, and some hints on how to have some difficult discussions with the sufferer before their mind begins to slip.This book is real and raw and its' aim is to help those who find themselves in the same terrible position as Kevin and his family.

Palliative Care for Advanced Alzheimer's and Dementia

Author: Gary Martin, PhD

Publisher: Springer Publishing Company

Published: 2010-07-23

Total Pages: 334

ISBN-13: 0826106765

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2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life

Living with Lewy Body Dementia

Author: Judy Towne Jennings Pt Ma

Publisher: WestBow Press

Published: 2012-09

Total Pages: 160

ISBN-13: 1449760953

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"Judy is a wonderful physical therapist, who has energy, enthusiasm and the best 'can do' attitude. She has accurately given a description of the major task of 'in-home care' that most people cannot understand. I applaud her efforts; both the monumental task of care for Dean (who was a super guy) and writing this helpful book. Job well done!" -Joyce Dunlevy Cready, RN, BSN, Rehabilitation "I want to commend Mrs. Jennings on the work done to put together this book. It will be a valuable resource for patients and caregivers, and provides an honest and thoughtful look at her experiences with LBD. It was an honor to care for Dean and I know that her work with him and in this book will help others who are going through the same difficult life journey." -Andrew P. Duker, MD, Neurology "This book is medically appropriate and concise. The information has breadth that is not available in other books. I will recommend it to all my patients with Lewy Body Dementia." -James P. Simcoe, MD, Family Practice "What an outstanding caregiver and loving wife to share this most personal knowledge, gained from her heartfelt experience with Lewy Body Dementia." - Peter A. Towne, PT, FAPTA Linda L. Towne, PT, MEd, Orthopedic and Neurological Physical Therapy