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I Love Someone with Dementia... So Why Am I Losing My Mind?

Author: Beth Friesen

Publisher: Infusionmedia

Published: 2019-06

Total Pages: 96

ISBN-13: 9781945834080

How did it begin for you? In our family, we went through theories to explain it all away. This game went on for at least a year or two before one day, it clicked. Mom had Alzheimer's. This book is meant to be a guide to help you and those you love navigate the overwhelming diagnosis of dementia, especially Alzheimer's Dementia, and the months and years that follow. It includes what we wish we had known, what we learned, and the resources that helped us along the way. "This book is an excellent and practical guide to help you navigate this tough challenge from the beginning to the end." --Suzy Nootz, MSN, RN, CDP, Country House Residence for Memory Care "An empathic and helpful guide in understanding and negotiating the process of recognizing, diagnosing, treating, and coping with a loved one with Alzheimer's Dementia." --Dr. Robert G. Arias, PhD, Arias Neuropsychology & Behavioral Medicine, PC

Loving Someone Who Has Dementia

Author: Pauline Boss

Publisher: John Wiley & Sons

Published: 2011-06-24

Total Pages: 256

ISBN-13: 1118077288

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Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

In Love

Author: Amy Bloom

Publisher: Random House

Published: 2022-03-08

Total Pages: 241

ISBN-13: 0593243943

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NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

When I’m Not Me Anymore

Author: Rhonda Hoffman

Publisher: iUniverse

Published: 2019-10-08

Total Pages: 44

ISBN-13: 1532080360

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A familiar stranger. That is who my mom became as dementia slowly took hold of her. She was someone I knew and loved but not the same person she had been. A profound sadness hit me when I realized that my daughters may one day have to deal with me in this same condition and I wanted them to know that who I become if this happens is not really who I am. The things I will say and do will be coming from someone who has gradually become a stranger to them. Everything about our life together will change when I have nowhere to go and all day to get there, forgetting that they still have commitments, appointments and things to do. We will experience a sense of time travel as my memories from the past become jumbled up in the happenings of each new day. The change in my language could bring about surprising and sometimes disturbing conversations as the filters from the past wane and they see me in my uncut glory. This is a love letter of instruction to my daughters while I am able to express myself fully with prompts for you to do the same for your children or to chronicle meaningful times in the lives of your parents before the chance is lost forever.

Dementia

Author: John Swinton

Publisher: SCM Press

Published: 2017-01-31

Total Pages: 304

ISBN-13: 0334049644

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Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.

Dementia Reimagined

Author: Tia Powell

Publisher: Penguin

Published: 2020-09-01

Total Pages: 322

ISBN-13: 0735210918

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Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.

Mom’s Losing Her Memory I’m Losing My Mind!

Author: Kathy Jean Stewart RN BSN

Publisher: BalboaPress

Published: 2013-04-08

Total Pages: 252

ISBN-13: 1452569347

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“The subject of physical and mental deterioration and its consequences on people and their loved ones is one that most of us prefer to avoid, even those of us who provide medical care to the elderly. Yet, this is often part of the human experience. Information written on the subject is usually dry and didactic. Kathy Stewart has granted the reader access to her world, the assisted living community, where extraordinary needs are met by extraordinary people. Through interesting, illustrative, and poignant vignettes, a realistic, often intense and yet hopeful experience is accorded the reader. This book, crafted professionally and compassionately, is a gem that should be read not only by relatives of people suffering progressive memory loss but by all of us, since many of us will eventually be touched by this situation in our lifetimes.” —Mark H. Greenberg, MD, FACR, Rheumatologist, Author of “Doctor, Why Do I Hurt So Much?” “Few events impact an entire family more than the onset of dementia in a parent, spouse, sibling, or close friend. Drawing upon her own personal and professional experiences, Kathy Stewart has developed a practical guide for caregivers. The book is easy to read, yet it provides a wealth of useful information which is accessible to all. It should provide knowledge and comfort for anyone caring for an individual with dementia.” —George A. Kuchel, M.D., FRCPC, Professor, Citicorp Chair in Geriatrics & Gerontology, Director, UConn Center on Aging, University of Connecticut Health Center “Kathy Stewart has provided an outstanding, informative, and useful guide. This book is required reading for all adult children and caregivers who seek to provide the best possible care for Mom and Dad. I wish I had this book when my own mother developed stroke-related dementia and needed extensive specialized care.” —Elly Trepman, M.D., Professional Associate, Department of Medical Microbiology, University of Manitoba, www.manuscriptsurgeon.com

Das Gehirn meines Vaters

Author: Jonathan Franzen

Publisher: PONS

Published: 2009

Total Pages: 100

ISBN-13: 9783125615472

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2-sprachiger Lektüreband mit einer Erzählung von Jonathan Frantzen und einer Audio-CD mit dem englischen Text; für Lernende mit guten Vorkenntnissen.

It's OK That You're Not OK

Author: Megan Devine

Publisher: Sounds True

Published: 2017-10-01

Total Pages: 192

ISBN-13: 1622039084

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Challenging conventional wisdom on grief, a pioneering therapist offers a new resource for those experiencing loss When a painful loss or life-shattering event upends your world, here is the first thing to know: there is nothing wrong with grief. “Grief is simply love in its most wild and painful form,” says Megan Devine. “It is a natural and sane response to loss.” So, why does our culture treat grief like a disease to be cured as quickly as possible? In It’s OK That You’re Not OK, Megan Devine offers a profound new approach to both the experience of grief and the way we try to help others who have endured tragedy. Having experienced grief from both sides—as both a therapist and as a woman who witnessed the accidental drowning of her beloved partner—Megan writes with deep insight about the unspoken truths of loss, love, and healing. She debunks the culturally prescribed goal of returning to a normal, “happy” life, replacing it with a far healthier middle path, one that invites us to build a life alongside grief rather than seeking to overcome it. In this compelling and heartful book, you’ll learn: • Why well-meaning advice, therapy, and spiritual wisdom so often end up making it harder for people in grief • How challenging the myths of grief—doing away with stages, timetables, and unrealistic ideals about how grief should unfold—allows us to accept grief as a mystery to be honored instead of a problem to solve • Practical guidance for managing stress, improving sleep, and decreasing anxiety without trying to “fix” your pain • How to help the people you love—with essays to teach us the best skills, checklists, and suggestions for supporting and comforting others through the grieving process Many people who have suffered a loss feel judged, dismissed, and misunderstood by a culture that wants to “solve” grief. Megan writes, “Grief no more needs a solution than love needs a solution.” Through stories, research, life tips, and creative and mindfulness-based practices, she offers a unique guide through an experience we all must face—in our personal lives, in the lives of those we love, and in the wider world. It’s OK That You’re Not OK is a book for grieving people, those who love them, and all those seeking to love themselves—and each other—better.

Still Alice

Author: Lisa Genova

Publisher: Simon and Schuster

Published: 2010-08-05

Total Pages: 376

ISBN-13: 1849833710

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A moving story of a woman with early onset Alzheimer's disease, now a major Academy Award-winning film starring Julianne Moore and Kristen Stewart. Alice Howland is proud of the life she worked so hard to build. At fifty, she's a cognitive psychology professor at Harvard and a renowned expert in linguistics, with a successful husband and three grown children. When she begins to grow forgetful and disoriented, she dismisses it for as long as she can until a tragic diagnosis changes her life - and her relationship with her family and the world around her - for ever. Unable to care for herself, Alice struggles to find meaning and purpose as her concept of self gradually slips away. But Alice is a remarkable woman, and her family learn more about her and each other in their quest to hold on to the Alice they know. Her memory hanging by a frayed thread, she is living in the moment, living for each day. But she is still Alice. 'Remarkable … illuminating … highly relevant today' Daily Mail 'The most accurate account of what it feels like to be inside the mind of an Alzheimer's patient I've ever read. Beautifully written and very illuminating' Rosie Boycot 'Utterly brilliant' Chrissy Iley