Health Literacy and Palliative Care

Health Literacy and Palliative Care PDF

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-06-18

Total Pages: 137

ISBN-13: 0309380367

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The Institute of Medicine Roundtable on Health Literacy convened a 1-day public workshop to explore the relationship between palliative care and health literacy, and the importance of health literate communication in providing high-quality delivery of palliative care. Health Literacy and Palliative Care summarizes the discussions that occurred throughout the workshop and highlights the key lessons presented, practical strategies, and the needs and opportunities for improving health literacy in the United States.

Textbook of Palliative Care Communication

Textbook of Palliative Care Communication PDF

Author: Elaine Wittenberg

Publisher: Oxford University Press, USA

Published: 2015-11-20

Total Pages: 457

ISBN-13: 0190201703

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'The Textbook of Palliative Care Communication' is the authoritative text on communication in palliative care. Uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, it unites clinicians and academic researchers interested in the study of communication.

Health Literacy in Palliative Care

Health Literacy in Palliative Care PDF

Author: Jacquie Kidd

Publisher:

Published: 2014

Total Pages: 0

ISBN-13:

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This research uses a qualitative kaupapa Māori methodology to identify, from a health literacy perspective, issues for Māori and their whānau in accessing palliative care services. The report finds that Māori patients and whānau face barriers in accessing palliative care services for reasons relating to tikanga, unfamiliar and complex services, health professionals avoiding or mismanaging the 'hard conversations' around the shift from active treatment to palliative care, and the cultural character of specialist palliative care services. While some health professionals had developed skills to address health literacy issues, these skills were not always reflected by their organisations. However many of the Māori patients and whānau involved in the study used a range of high level health literacy practices to inform their critical thinking and decision making.

Health Literacy and Older Adults

Health Literacy and Older Adults PDF

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-11-16

Total Pages: 103

ISBN-13: 0309479460

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Adults age 65 and older make up the fastest-growing segment of the U.S. population. At the same time, the complexity of health care delivery continues to grow, creating challenges that are magnified for older adults, given that age is one of the highest correlates of low health literacy. This creates a shared obligation between health care and the health care team to use the principles, tools, and practices of health literacy so that patients and families of older adults can more easily navigate discussions related to chronic disease, polypharmacy, long-term care, palliative care, insurance complexities, the social determinants of health, and other factors that create challenges for older adults, particularly among underserved populations nationwide. To gain a better understanding of the health communication challenges among older adults and their professional and family caregivers and how those challenges affect the care older adults receive, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Health Literacy convened a 1-day public workshop featuring presentations and discussions that examined the effect of low health literacy on the health of older adults. This publication summarizes the presentations and discussions from the workshop.

Caring for the Family Caregiver

Caring for the Family Caregiver PDF

Author: Elaine Wittenberg

Publisher: Oxford University Press, USA

Published: 2020-09-11

Total Pages: 241

ISBN-13: 0190055235

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"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--

Mā̄ori Health Literacy and Communication in Palliative Care

Mā̄ori Health Literacy and Communication in Palliative Care PDF

Author: Rauawaawa Kaumātua Charitable Trust

Publisher:

Published: 2014

Total Pages: 0

ISBN-13:

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The central focus of this study (239 pages), from Rauawaawa Kaumātua Charitable Trust, was to identify access issues for kaumātua and their whānau in palliative care services, using a health literacy perspective. Health literacy is conceptualised as a multidimensional construct involving functional, technical, interactive, cultural, and critical/advocacy aspects. The vision for this study was to develop appropriate models of communication that can be utilised within palliative care services, including practices and interventions that enhance kaumātua and whānau knowledge and experience of palliative care, and improve delivery of those services by clinicians and community health kaimahi (workers). The aim was to identify key communication practices that contribute to Māori health literacy and kaumātua and whānau experiences of end-of-life planning and care, as well as clinicians' and community kaimahi delivery of these services. This report is one of three produced from the Kia Mau te Kahu Whakamauru project. Read in conjunction with: * Palliative Care and Māori from a Health Literacy Perspective * Kia Mau te Kahu Whakamauru: Health Literacy in Palliative Care. Use these keywords to locate the other reports from this project: Kia Mau te Kahu Whakamauru. Table of contents: * Whakarapopototanga - Executive summary * Chapter 1: He korero whakatauki - Introduction * Chapter 2: Arotakenga matatuhi - Literature review * Chapter 3: He whakaritenga - Research approach * Chapter 4: Nga tumanako me nga whakaaro o nga Kaumatua - Hopes and thoughts of Kaumatua (by theme) * Chapter 5: Whai whakaaro o nga Whanau - Hopes and thoughts of whanau (by theme) * Chapter 6: Whai whakaaro o nga Kaimahi-- Hopes and thoughts of palliative care workers * Chapter 7: Kei whea nga mohiotanga? A cultural-discursive and health literacy analysis of palliative care brochures * Chapter 8: The use of emergency departments by palliative care patients: A document audit * Chapter 9: Nga tuhituhinga me ngā kōrero--making connections: Models of communication and health literacy in palliative care of Kaumatua and their Whanau * Nga Apitihanga--Appendices.

Communication in Palliative Nursing

Communication in Palliative Nursing PDF

Author: Elaine Wittenberg

Publisher: Oxford University Press, USA

Published: 2020-01-23

Total Pages: 329

ISBN-13: 0190061324

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"The first edition of Communication in Palliative Nursing was published in 2012 and became the market leader for nurses wanting to learn more about how to improve and teach palliative care communication. For the last 8 years, it has remained the only text solely focused on the vital role of nurses in palliative care. During this time, the COMFORT model was taught to nurses nationwide who brought the curriculum back to their own institutions and taught components of the model to more than 10,000 healthcare providers across the United States (Wittenberg, Ferrell, Goldsmith, Ragan, & Buller, 2017). Numerous journal articles and research studies have been produced to highlight the principle components of the COMFORT model and test its effectiveness among healthcare audiences across a variety of clinical and educational settings. Through this all, as the model was disseminated to clinical audiences of bedside nurses, nurse leaders, nursing students, and interprofessional learners, feedback was captured about COMFORT. Comments revealed major components of the model that were working and weren't working for the nurses and other healthcare providers who utilized the strategies with patients and families, and began using curriculum tools for teaching and integrating palliative care communication instruction. So, much like the model's grounding in a transactional communication approach, which relies on the co-created interaction between parties, it was clear that the COMFORT model was also ebbing and flowing and had to change. More importantly, palliative care has been growing, changing, expanding, and becoming more sophisticated, more wide-spread! Now more than ever before, palliative care is provided in the home, clinic, or inpatient setting and serves patients who are seriously or chronically ill and their families. It became evident that in order to continue improvements to the model and to keep up with the changing landscape of palliative care and palliative patient populations, a new edition was necessary. Before we highlight the changes, it is never too early to overstate our steadfast commitment to the following principles: We believe that communication research and theory can shape palliative care practices, providing tools for a variety of contexts. We believe that palliative care, offering compassionate, holistic treatment for patients and their families, will not be possible without caring for the entire person (body and mind). We believe that communicating about palliative care must begin at diagnosis of serious illness, not just at end-stages. We believe in a patient-centered approach to communication that emphasizes the role of the family caregiver in the illness trajectory. We believe that intentional communication emphasizing team processes among physicians, nurses, social workers, chaplains, and other healthcare professionals improves palliative care practice. We believe that palliative care should be introduced early in the communication education of all health professionals. We believe that education about palliative care and communication must extend to patients and families who can then advocate for and partner more productively in such services. We believe that communication with the family caregiver is essential for the treatment of pain and symptom management. We believe that frequent conversations are needed across the disease/care trajectory, as patients and families encounter ongoing points of decision-making"--

Building the Case for Health Literacy

Building the Case for Health Literacy PDF

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-08-26

Total Pages: 171

ISBN-13: 0309474299

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The field of health literacy has evolved from one focused on individuals to one that recognizes that health literacy is multidimensional. While communicating in a health literate manner is important for everyone, it is particularly important when communicating with those with limited health literacy who also experience more serious medication errors, higher rates of hospitalization and use of the emergency room, poor health outcomes, and increased mortality. Over the past decade, research has shown that health literacy interventions can significantly impact various areas including health care costs, outcomes, and health disparities. To understand the extent to which health literacy has been shown to be effective at contributing to the Quadruple Aim of improving the health of communities, providing better care, providing affordable care, and improving the experience of the health care team, the National Academies of Sciences, Engineering, and Medicine convened a public workshop on building the case for health literacy. This publication summarizes the presentations and discussions from the workshop, and highlights important lessons about the role of health literacy in meeting the Quadruple Aim, case studies of organizations that have adopted health literacy, and discussions among the different stakeholders involved in making the case for health literacy.

Health Literacy From A to Z

Health Literacy From A to Z PDF

Author: Helen Osborne

Publisher: Jones & Bartlett Publishers

Published: 2013

Total Pages: 282

ISBN-13: 1449600530

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With patient experience at the forefront of health care, effective communication of health messages is critical to quality care. This book offers proven strategies to help providers clearly explain health information to a variety of audiences, from patients and caregivers, to students and the public.