Gone But Not Forgotten: Coping with Bereavement After Dementia

Gone But Not Forgotten: Coping with Bereavement After Dementia PDF

Author: Tracy Gough

Publisher:

Published: 2020-08-23

Total Pages: 256

ISBN-13: 9781999983826

DOWNLOAD EBOOK →

This is a book written for caregivers who have lost loved ones to dementia. Bereavement through dementia is often regarded as a 'double bereavement' as often you lose the person to the illness and then once again through death.The book guides you through your own individual grief process and has strategies to help you cope with moving forward with your own life. There is also space throughout this book to write your own reflective thoughts.

Gone But Not Forgotten: Coping with Bereavement After Dementia

Gone But Not Forgotten: Coping with Bereavement After Dementia PDF

Author: Tracy Gough

Publisher:

Published: 2020-08-23

Total Pages: 256

ISBN-13: 9781999983826

DOWNLOAD EBOOK →

This is a book written for caregivers who have lost loved ones to dementia. Bereavement through dementia is often regarded as a 'double bereavement' as often you lose the person to the illness and then once again through death.The book guides you through your own individual grief process and has strategies to help you cope with moving forward with your own life. There is also space throughout this book to write your own reflective thoughts.

The Grieving Brain

The Grieving Brain PDF

Author: Mary-Frances O'Connor

Publisher: HarperCollins

Published: 2022-02-01

Total Pages: 245

ISBN-13: 0062946250

DOWNLOAD EBOOK →

The Grieving Brain has descriptive copy which is not yet available from the Publisher.

I Will Never Forget

I Will Never Forget PDF

Author: Elaine C. Pereira

Publisher: iUniverse

Published: 2014

Total Pages: 283

ISBN-13: 1938908589

DOWNLOAD EBOOK →

It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver

Dementia: The Basics

Dementia: The Basics PDF

Author: Anthea Innes

Publisher: Routledge

Published: 2020-06-15

Total Pages: 102

ISBN-13: 1317484622

DOWNLOAD EBOOK →

Dementia: The Basics provides the reader with a clear and compassionate introduction to dementia and an accessible guide to dealing with different parts of the dementia journey, from pre-diagnosis and diagnosis to post-diagnostic support, increasing care needs and end of life care. Co-authored by an academic, a person living with dementia and a family carer, the book endeavours to raise awareness of dementia, challenge stereotypical and negative ideas about what it means to have dementia and champion a society where people living with dementia can be active as they wish for as long as possible. The authors present an overview of current research at each step of the dementia journey as well as including knowledge from lived experience, enhancing understanding and challenging thinking about what it might be like to live with a diagnosis or to care for a loved one. As a whole, the book emphasises the importance of prioritising the person living with dementia, as well as considering the impact of what any initiative or action might mean for them, their families and their care supporters. Offering both an accessible introduction to dementia and practical tools, this book will be ideal for health and social care professionals, students of social care, health care and nursing, people with dementia, carers and anyone wanting to understand more about the condition.

Dementia Reconsidered Revisited: The Person Still Comes First

Dementia Reconsidered Revisited: The Person Still Comes First PDF

Author: Tom Kitwood

Publisher: McGraw-Hill Education (UK)

Published: 2019-01-07

Total Pages: 234

ISBN-13: 0335248039

DOWNLOAD EBOOK →

The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK

Losing My Mind

Losing My Mind PDF

Author: Thomas DeBaggio

Publisher: Simon and Schuster

Published: 2002-04-05

Total Pages: 221

ISBN-13: 0743216725

DOWNLOAD EBOOK →

When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.

AARP Loving Someone Who Has Dementia

AARP Loving Someone Who Has Dementia PDF

Author: Pauline Boss

Publisher: John Wiley & Sons

Published: 2011-12-12

Total Pages: 149

ISBN-13: 1118245695

DOWNLOAD EBOOK →

AARP Digital Editions offer you practical tips, proven solutions, and expert guidance. In Loving Someone Who Has Dementia, Pauline Boss provides research-based advice for people who care for someone with dementia. Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

Ambiguous Loss

Ambiguous Loss PDF

Author: Pauline BOSS

Publisher: Harvard University Press

Published: 2009-06-30

Total Pages: 166

ISBN-13: 0674028589

DOWNLOAD EBOOK →

When a loved one dies we mourn our loss. We take comfort in the rituals that mark the passing, and we turn to those around us for support. But what happens when there is no closure, when a family member or a friend who may be still alive is lost to us nonetheless? How, for example, does the mother whose soldier son is missing in action, or the family of an Alzheimer's patient who is suffering from severe dementia, deal with the uncertainty surrounding this kind of loss? In this sensitive and lucid account, Pauline Boss explains that, all too often, those confronted with such ambiguous loss fluctuate between hope and hopelessness. Suffered too long, these emotions can deaden feeling and make it impossible for people to move on with their lives. Yet the central message of this book is that they can move on. Drawing on her research and clinical experience, Boss suggests strategies that can cushion the pain and help families come to terms with their grief. Her work features the heartening narratives of those who cope with ambiguous loss and manage to leave their sadness behind, including those who have lost family members to divorce, immigration, adoption, chronic mental illness, and brain injury. With its message of hope, this eloquent book offers guidance and understanding to those struggling to regain their lives. Table of Contents: 1. Frozen Grief 2. Leaving without Goodbye 3. Goodbye without Leaving 4. Mixed Emotions 5. Ups and Downs 6. The Family Gamble 7. The Turning Point 8. Making Sense out of Ambiguity 9. The Benefit of a Doubt Notes Acknowledgments Reviews of this book: You will find yourself thinking about the issues discussed in this book long after you put it down and perhaps wishing you had extra copies for friends and family members who might benefit from knowing that their sorrows are not unique...This book's value lies in its giving a name to a force many of us will confront--sadly, more than once--and providing personal stories based on 20 years of interviews and research. --Pamela Gerhardt, Washington Post Reviews of this book: A compassionate exploration of the effects of ambiguous loss and how those experiencing it handle this most devastating of losses ... Boss's approach is to encourage families to talk together, to reach a consensus about how to mourn that which has been lost and how to celebrate that which remains. Her simple stories of families doing just that contain lessons for all. Insightful, practical, and refreshingly free of psychobabble. --Kirkus Review Reviews of this book: Engagingly written and richly rewarding, this title presents what Boss has learned from many years of treating individuals and families suffering from uncertain or incomplete loss...The obvious depth of the author's understanding of sufferers of ambiguous loss and the facility with which she communicates that understanding make this a book to be recommended. --R. R. Cornellius, Choice Reviews of this book: Written for a wide readership, the concepts of ambiguous loss take immediate form through the many provocative examples and stories Boss includes, All readers will find stories with which they will relate...Sensitive, grounded and practical, this book should, in my estimation, be required reading for family practitioners. --Ted Bowman, Family Forum Reviews of this book: Dr. Boss describes [the] all-too-common phenomenon [of unresolved grief] as resulting from either of two circumstances: when the lost person is still physically present but emotionally absent or when the lost person is physically absent but still emotionally present. In addition to senility, physical presence but psychological absence may result, for example, when a person is suffering from a serious mental disorder like schizophrenia or depression or debilitating neurological damage from an accident or severe stroke, when a person abuses drugs or alcohol, when a child is autistic or when a spouse is a workaholic who is not really 'there' even when he or she is at home...Cases of physical absence with continuing psychological presence typically occur when a soldier is missing in action, when a child disappears and is not found, when a former lover or spouse is still very much missed, when a child 'loses' a parent to divorce or when people are separated from their loved ones by immigration...Professionals familiar with Dr. Boss's work emphasised that people suffering from ambiguous loss were not mentally ill, but were just stuck and needed help getting past the barrier or unresolved grief so that they could get on with their lives. --Asian Age Combining her talents as a compassionate family therapist and a creative researcher, Pauline Boss eloquently shows the many and complex ways that people can cope with the inevitable losses in contemporary family life. A wise book, and certain to become a classic. --Constance R. Ahrons, author of The Good Divorce A powerful and healing book. Families experiencing ambiguous loss will find strategies for seeing what aspects of their loved ones remain, and for understanding and grieving what they have lost. Pauline Boss offers us both insight and clarity. --Kathy Weingarten, Ph.D, The Family Institute of Cambridge, Harvard Medical School

Surviving Alzheimer's

Surviving Alzheimer's PDF

Author: PAULA SPENCER. SCOTT

Publisher:

Published: 2018-01-11

Total Pages: 402

ISBN-13: 9780999555705

DOWNLOAD EBOOK →

The book recommended by dementia experts and family caregivers as the most complete, practical guide to Alzheimer's and other dementias-now updated and expanded through end-of-life care. This new edition of Surviving Alzheimer's offers the best, most current thinking on how to help a loved one with memory loss and related symptoms without sacrificing YOU. You'll learn: What's behind odd, frustrating behaviors like repetition, wandering, personality changes, bathing resistance, and aggression-and what you can do How to defuse resentment, guilt, and family friction What to say for better communication and more cooperation Special advice for spouses, out-of-town caregivers, and other specific situations 100s of confidence-raising solutions from top doctors, social workers, dementia specialists, and family caregivers All in a fast, scannable format perfect for busy or overwhelmed dementia helpers.