Addressing Sickle Cell Disease

Addressing Sickle Cell Disease PDF

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2021-01-22

Total Pages: 523

ISBN-13: 030966960X

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Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.

Family Medicine

Family Medicine PDF

Author: J. L. Buckingham

Publisher: Springer Science & Business Media

Published: 2013-06-29

Total Pages: 1399

ISBN-13: 1475739990

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JOHN S. MILLIS In 1966 the Citizens Commission on Graduate Medical Education observed that the explosive growth in biomedical science and the consequent increase in medical skill and technology of the twentieth century had made it possible for physicians to respond to the episodes of illness of patients with an ever-increasing effectiveness, but that the increase in knowledge and technology had forced most physicians to concentrate upon a disease entity, an organ or organ system, or a particular mode of diagnosis or therapy. As a result there had been a growing lack of continuing and comprehensive patient care. The Commission expressed the opinion that "Now, in order to bring medicine's enhanced diagnostic and therapeutic powers fully to the benefit of society, it is necessary to have many physicians who can put medicine together again. "! The Commission proceeded to recommend the education and training of sub stantial numbers of Primary Physicians who would, by assuming primary responsi bility for the patient's welfare in sickness and in health, provide continuing and comprehensive health care to the citizens of the United States. In 1978 it is clear that the recommendation has been accepted by the public, the medical profession, and medical education. There has been a vigorous response in the development of family medicine and in the fields of internal medicine, pediatrics, and obstetrics. One is particularly impressed by the wide acceptance on the part of medical students of the concept of the primary physician. Dr. John S.

Our Own Way in This Part of the World

Our Own Way in This Part of the World PDF

Author: Kwasi Konadu

Publisher: Duke University Press

Published: 2019-04-15

Total Pages: 328

ISBN-13: 1478005637

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Kofi Dᴐnkᴐ was a blacksmith and farmer, as well as an important healer, intellectual, spiritual leader, settler of disputes, and custodian of shared values for his Ghanaian community. In Our Own Way in This Part of the World Kwasi Konadu centers Dᴐnkᴐ's life story and experiences in a communography of Dᴐnkᴐ's community and nation from the late nineteenth century through the end of the twentieth, which were shaped by historical forces from colonial Ghana's cocoa boom to decolonization and political and religious parochialism. Although Dᴐnkᴐ touched the lives of thousands of citizens and patients, neither he nor they appear in national or international archives covering the region. Yet his memory persists in his intellectual and healing legacy, and the story of his community offers a non-national, decolonized example of social organization structured around spiritual forces that serves as a powerful reminder of the importance for scholars to take their cues from the lived experiences and ideas of the people they study.