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Author: Clara Claiborne Park
Publisher: Hachette+ORM
Published: 2009-06-27
Total Pages: 183
ISBN-13: 0316075299
DOWNLOAD EBOOK →Exiting Nirvana details Clara Claiborne Park's continuing efforts to have her daughter Jessy 'exit Nirvana,' develop as an artist, and connect with our world.
Author: Tracie White
Publisher: Legacy Lit
Published: 2021-01-05
Total Pages: 240
ISBN-13: 0316492493
DOWNLOAD EBOOK →A Father, His Son, and an Unrelenting Quest for a Cure At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist after specialist, where at one point his 6'3" frame dropped to 115 lbs. For years, he underwent endless medical tests, but doctors told him there was nothing wrong. Then, finally, a diagnosis: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis. In the 80s, when an outbreak of people immobilized by an indescribable fatigue were reported near Lake Tahoe, Nevada, doctors were at a loss to explain the symptoms. The condition would alternatively be nicknamed Raggedy Ann Syndrome or the Yuppie Disease, and there was no cure or answers about treatment. They were to remain sick. But there was one answer: Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition. In The Puzzle Solver, journalist Tracie White, who first wrote a viral and award-winning piece on Davis and his family in Stanford Medicine, tells his story. In gripping prose, she masterfully takes readers along on this journey with Davis to solve one of the greatest mysteries in medicine. In a piercing investigative narrative, closed doors are opened, and masked truths are exposed as Davis uncovers new proof confirming that Chronic Fatigue Syndrome is a biological disease. At the heart of this book is a moving story that goes far beyond medicine, this is a story about how the power of love -- and science -- can shine light in even the darkest, most hidden, corners of the world.
Author: Marga Vicedo
Publisher: Beacon Press
Published: 2021-03-23
Total Pages: 274
ISBN-13: 0807025631
DOWNLOAD EBOOK →How one mother challenged the medical establishment and misconceptions about autistic children and their parents In the early 1960s, Massachusetts writer and homemaker Clara Park and her husband took their 3-year-old daughter, Jessy, to a specialist after noticing that she avoided connection with others. Following the conventional wisdom of the time, the psychiatrist diagnosed Jessy with autism and blamed Clara for Jessy’s isolation. Experts claimed Clara was the prototypical “refrigerator mother,” a cold, intellectual parent who starved her children of the natural affection they needed to develop properly. Refusing to accept this, Clara decided to document her daughter’s behaviors and the family’s engagement with her. In 1967, she published her groundbreaking memoir challenging the refrigerator mother theory and carefully documenting Jessy’s development. Clara’s insights and advocacy encouraged other parents to seek education and support for their autistic children. Meanwhile, Jessy would work hard to expand her mother’s world, and ours. Drawing on previously unexamined archival sources and firsthand interviews, science historian Marga Vicedo illuminates the story of how Clara Park and other parents fought against medical and popular attitudes toward autism while presenting a rich account of major scientific developments in the history of autism in the US. Intelligent Love is a fierce defense of a mother’s right to love intelligently, the value of parents’ firsthand knowledge about their children, and an individual’s right to be valued by society.
Author: Paul Brannigan
Publisher: Da Capo Press, Incorporated
Published: 2011-11-29
Total Pages: 417
ISBN-13: 0306819562
DOWNLOAD EBOOK →Originally published: London: HarperCollins, 2011.
Author: Clare Dunsford
Publisher: Beacon Press
Published: 2007
Total Pages: 230
ISBN-13: 9780807072790
DOWNLOAD EBOOK →A memoir in which the author tells how she and her husband learned their son J.P. had fragile X syndrome, the most common inherited form of mental retardation, discusses how she and other family members reacted to the news that they carried the premutation and had passed it to their children, and describes life with J.P., now a confident, imaginative adult.
Author: Shana Nichols
Publisher: Jessica Kingsley Publishers
Published: 2009-01-15
Total Pages: 352
ISBN-13: 9781846428852
DOWNLOAD EBOOK →'This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.' -Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome Growing up isn't easy, and the trials and tribulations of being a teenager can be particularly confusing for girls with Autism Spectrum Disorders (ASDs). This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and 'fitting in'. Taking a good look at these adolescent issues, and many more, within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help their daughters - and the whole family - through the teenage years. This book addresses core issues such as cognition, communication, behavior, sensory sensitivities, and social difficulties; it gives candid and realistic advice on a wide range of important teenage topics. Providing professional perspectives alongside personal experiences from mothers, daughters and educators, this is a unique and indispensible guide for families and their daughters with ASDs, as well as the teachers and professionals who work with them.
Author: Clara Claiborne Park
Publisher: Back Bay Books
Published: 1982-06-30
Total Pages: 352
ISBN-13: 9780316690690
DOWNLOAD EBOOK →This classic work tells the tale of how a devoted mother accomplished miracles in fostering the intellectual, social and emotional development of her autistic daughter.
Author: Todd May
Publisher: University of Chicago Press
Published: 2015-04-02
Total Pages: 210
ISBN-13: 022623570X
DOWNLOAD EBOOK →“A tour de force. It is a thoughtful, subtle, beautifully written discussion of what it takes to live a meaningful life.” —Barry Schwartz, author of The Paradox of Choice Throughout history most of us have looked to faith, relationships, or deeds to give our lives purpose. But in A Significant Life, philosopher Todd May offers an exhilarating new way of thinking about meaning, one deeply attuned to life as it actually is: a work in progress, a journey—and often a narrative. Offering moving accounts of his own life alongside rich engagements with philosophers from Aristotle to Heidegger, he shows us where to find the significance of our lives: in the way we live them. May starts by looking at the fundamental fact that life unfolds over time, and as it does so, it begins to develop certain qualities, certain themes. Our lives can be marked by intensity, curiosity, perseverance, or many other qualities that become guiding narrative values. These values lend meanings to our lives that are distinct from—but also interact with—the universal values we are taught to cultivate, such as goodness or happiness. Offering a fascinating examination of a broad range of figures—from music icon Jimi Hendrix to civil rights leader Fannie Lou Hamer, from cyclist Lance Armstrong to The Portrait of a Lady’s Ralph Touchett to Claus von Stauffenberg, a German officer who tried to assassinate Hitler—May shows that narrative values offer a rich variety of criteria by which to assess a life, specific to each of us and yet widely available. They offer us a way of reading ourselves, who we are, and who we might like to be.
Author: Jessy Park
Publisher:
Published: 2008
Total Pages: 95
ISBN-13: 9780981473208
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