Ethics in Linked Data
Author: Kathleen Burlingame
Publisher: Library Juice Press
Published: 2022-12
Total Pages: 0
ISBN-13: 9781634001335
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The Big Data Agenda
Author: Annika Richterich
Publisher: University of Westminster Press
Published: 2018-04-13
Total Pages: 156
ISBN-13: 1911534734
DOWNLOAD EBOOK →This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Putting People on the Map
Author: National Research Council
Publisher: National Academies Press
Published: 2007-02-22
Total Pages: 176
ISBN-13: 0309185572
DOWNLOAD EBOOK →Precise, accurate spatial information linked to social and behavioral data is revolutionizing social science by opening new questions for investigation and improving understanding of human behavior in its environmental context. At the same time, precise spatial data make it more likely that individuals can be identified, breaching the promise of confidentiality made when the data were collected. Because norms of science and government agencies favor open access to all scientific data, the tension between the benefits of open access and the risks associated with potential breach of confidentiality pose significant challenges to researchers, research sponsors, scientific institutions, and data archivists. Putting People on the Map finds that several technical approaches for making data available while limiting risk have potential, but none is adequate on its own or in combination. This book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards.
Ethical Questions in Name Authority Control
Author: Jane Sandberg
Publisher: Library Juice Press
Published: 2018-10
Total Pages:
ISBN-13: 9781634000543
DOWNLOAD EBOOK →Explores and develops a framework for the ethical practice of name authority control, through theoretical and practice-based essays, stories, content analyses, and other methods
Ethics and Data Science
Author: Mike Loukides
Publisher: "O'Reilly Media, Inc."
Published: 2018-07-25
Total Pages: 37
ISBN-13: 1492078212
DOWNLOAD EBOOK →As the impact of data science continues to grow on society there is an increased need to discuss how data is appropriately used and how to address misuse. Yet, ethical principles for working with data have been available for decades. The real issue today is how to put those principles into action. With this report, authors Mike Loukides, Hilary Mason, and DJ Patil examine practical ways for making ethical data standards part of your work every day. To help you consider all of possible ramifications of your work on data projects, this report includes: A sample checklist that you can adapt for your own procedures Five framing guidelines (the Five C’s) for building data products: consent, clarity, consistency, control, and consequences Suggestions for building ethics into your data-driven culture Now is the time to invest in a deliberate practice of data ethics, for better products, better teams, and better outcomes. Get a copy of this report and learn what it takes to do good data science today.
Sharing Linked Data for Health Research
Author: Carolyn Adams
Publisher: Cambridge University Press
Published: 2022-06-09
Total Pages: 279
ISBN-13: 1108619916
DOWNLOAD EBOOK →Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
The Ethical Use of Data in Education
Author: Ellen Beth Mandinach
Publisher:
Published: 2022
Total Pages: 0
ISBN-13: 9781760942021
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Data Ethics and Challenges
Author: Samiksha Shukla
Publisher: Springer Nature
Published: 2022-03-31
Total Pages: 91
ISBN-13: 9811907528
DOWNLOAD EBOOK →This book gives a thorough and systematic introduction to Data, Data Sources, Dimensions of Data, Privacy, and Security Challenges associated with Data, Ethics, Laws, IPR Copyright, and Technology Law. This book will help students, scholars, and practitioners to understand the challenges while dealing with data and its ethical and legal aspects. The book focuses on emerging issues while working with the Data.
Registries for Evaluating Patient Outcomes
Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
Published: 2014-04-01
Total Pages: 396
ISBN-13: 1587634333
DOWNLOAD EBOOK →This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
