Epilepsy Across the Spectrum

Epilepsy Across the Spectrum PDF

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2012-07-29

Total Pages: 568

ISBN-13: 0309259533

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Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.

Navigating Life with Epilepsy

Navigating Life with Epilepsy PDF

Author: David C. Spencer

Publisher: Oxford University Press

Published: 2016-09-01

Total Pages: 313

ISBN-13: 0199358966

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Roughly 3 million people in the United States have already been diagnosed with epilepsy and another 200,000 new cases are diagnosed each year. Worldwide, approximately 1 percent of the global population is diagnosed with epilepsy at some point in their lives. With the diagnosis come questions, concerns, and uncertainties from both the person diagnosed and their family. So, where to go? Navigating Life with Epilepsy provides accessible, comprehensive, and up-to-date information about epilepsy shared from the two decades of experience of epileptologist David Spencer, MD, FAAN. This book guides the reader through the initial diagnosis, offers explanations on current approaches to diagnostic testing, medications, treatment options, and life management for the patient, their family, and their caregiver. Patient's stories are peppered throughout to illustrate that you are not alone: like you, they must navigate the myriad psychosocial challenges associated with epilepsy, including everyday concerns like driving, work, and relationships. Navigating Life with Epilepsy is a perfect resource for both patients with epilepsy and the family members and friends who care for them.

Quality of Life in Epilepsy

Quality of Life in Epilepsy PDF

Author: Gus A Baker

Publisher: Psychology Press

Published: 2013-05-13

Total Pages: 340

ISBN-13: 1134960891

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Though clinical aspects of epilepsy such as seizure control are crucially important to its management, increasing attention is being given to wider quality of life issues. Epilepsy continues to be an often misunderstood and stigmatising condition; for the vast majority of people whose seizures can be well controlled, the social and psychological repercussions are often of greater significance than the seizures themselves. The increasing emphasis on the importance of non-clinical outcomes in the assessment of new treatments and management strategies for chronic conditions such as epilepsy has stimulated interest in methodological issues in assessing quality of life. This book reviews the recent literature on the impact of epilepsy on everyday experience and the methodological issues involved in assessing that impact. It also considers the perspectives of a range of health professionals involved in caring for people with epilepsy and how, through appropriate management, the impact on their lives can be minimised.

Epilepsy in Our Lives

Epilepsy in Our Lives PDF

Author: Deborah T. Combs Cantrell

Publisher: Oxford University Press, USA

Published: 2008

Total Pages: 160

ISBN-13: 0195330862

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"Epilepsy in Our Lives is a collection of stories from women with epilepsy that describe in their own words what life is like with this disorder.

The Sacred Disease

The Sacred Disease PDF

Author: Kristin Seaborg

Publisher: Gravity Records

Published: 2015-11-03

Total Pages: 0

ISBN-13: 9781513705484

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Young Kristin Seaborg had the world at her fingertips: a loving family, happiness and security, early admission to medical school--until the frightening diagnosis of epilepsy threatened to destroy both her career path and her health. Living in constant fear that her seizures would intensify and prevent her from practicing medicine, Kristin kept her condition a closely guarded secret, leading a tenuous double life as patient and practitioner. A memoir of discovery, acceptance, and hope, The Sacred Disease chronicles Kristin's tenacious fight for a seizure-free life. Remarkably, although Kristin's knowledge and expertise continue to develop as a pediatrician and mother, her experiences as a vulnerable patient provide the most valuable lessons of all.

Epilepsy

Epilepsy PDF

Author: Adrienne Richard

Publisher: Bloomsbury Publishing USA

Published: 2009-05-29

Total Pages: 290

ISBN-13: 0802719503

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This book is a unique collaboration between a gifted writer with epilepsy and a skilled physician who has brought new insight into the treatment of this condition. At the age of twenty-six, when Adrienne Richard was seven months pregnant, she was diagnosed with epilepsy. For years she took anticonvulsant drugs to control her seizures, but she wanted to wean herself from the powerful drugs if she could. During the first ten years without medication she had only one seizure. Her goal was to live seizure-free. Ms. Richard practiced yoga, biofeedback, and mind/body techniques in the eighties to help her reach that goal. While writing an article for a magazine based in California, she learned of Dr. Joel Reiter, who was exploring epilepsy self-care in his clinical practice and through his groundbreaking research. Epilepsy: A New Approach combines Adrienne Richard's own inspiring story of overcoming a debilitating condition with Dr. Reiter's up-to-the-minute medical knowledge of diagnosis and treatment. This self-help program offers people with epilepsy and those who love them a chance to regain control of their lives.

Epilepsy

Epilepsy PDF

Author: Gregory L. Holmes

Publisher: Focus Medica Pte Limited

Published: 2008-01-01

Total Pages:

ISBN-13: 9789814206570

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Focusing on epilepsy, this animation provides a detailed description of brain seizures, their causes, diagnosis, and treatment, including surgery and counselling, as well as information about first-aid and self care. An interactive multimedia presentation with 3-D and 2-D animations, still images, and illustrations with corresponding text and audio, this CD-ROM is formatted for MS-Windows operating system.

Having Epilepsy

Having Epilepsy PDF

Author: Joseph Schneider

Publisher: Temple University Press

Published: 2009-01-28

Total Pages: 300

ISBN-13: 9781439900994

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Interviews with 80 individuals show how those with epilepsy learn to accept it as part of their lives.

The Brainstorms Woman

The Brainstorms Woman PDF

Author: Steven C. Schachter

Publisher:

Published: 2000

Total Pages: 152

ISBN-13: 9780781727495

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This text presents firsthand accounts written by women with seizure disorders. In their own words, these patients describe the experiences of coping with seizures, undergoing treatment, and coming to terms with the impact of epilepsy on their lives and relationships. These real-life stories offer insights into the issues encountered by women with epilepsy at every stage of life and the reproductive cycle.

SACRED LIVES

SACRED LIVES PDF

Author: IAN BONE

Publisher:

Published: 2022-01-27

Total Pages: 200

ISBN-13: 9781913913991

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In ancient times, epilepsy was a condition felt to be sacred. Early myths and mystique surrounding it led to persecution, demonisation, incarceration and social rejection.