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Comprehensive Cancer Care for Children and Their Families

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2015-08-31

Total Pages: 126

ISBN-13: 0309374448

Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop.

Cancer Care for the Whole Patient

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2008-03-19

Total Pages: 455

ISBN-13: 0309134161

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Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.

Comprehensive Cancer Care

Author: James Gordon

Publisher: Da Capo Press

Published: 2001-04-02

Total Pages: 336

ISBN-13: 9780738204864

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"This book represents truly pioneering work. It brings much needed information about the best of new cancer treatments to those who need it most and it does so with compassion and an inspired bedside manner."-Dean Ornish, M.D.Drawing on the studies and critiques of many of the world's most gifted researchers and clinicians, this book scientifically explores the most promising complementary and alternative therapies-and sifts through the often frustrating and confusing barrage of information and misinformation about them-to provide readers with the direction and help they need to create an individualized cancer-care strategy. Comprehensive Cancer Care includes reports on the most accepted and researched complementary and alternative practices, empowering advice for patients with clear action steps for speaking to doctors, and critical discussion of cutting-edge interventions.

Children With Cancer

Author: Jeanne Munn Bracken

Publisher: Oxford University Press

Published: 2010-07-06

Total Pages: 512

ISBN-13: 0199774226

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Children can and do survive cancer; the last decade has seen many major advancements in treatment. Written honestly, yet in a reassuring tone, by a reference librarian whose child has survived cancer, Children with Cancer draws together a wealth of up-to-date information essential for anyone who wishes to help a child or family through this ordeal--including relatives, friends, teachers, and clergymen, as well as doctors, nurses, and other health care professionals. The information ranges from sophisticated, hard-to-find medical facts to practical tips on how to handle side effects, and much more. Describing in detail the whole range of childhood cancers, Bracken explores how they affect the child, the treatments available, how to cope with the changes this diagnosis will bring to the entire family, and where to go for both medical and emotional help. It also includes an appendix of common medical tests, a glossary of terms, and comprehensive lists of organizations, clinics, and cancer centers, complete with names and addresses. Reviews of the previous edition: "A remarkable job....The technical information is clearly stated, up to date and accurate.....But most of all, this is a human book."--Los Angeles Times "Comprehensive, well written, accurate, and compassionate.... Bracken's book can serve as a primary reference for parents and can be used as well by health care professionals and teachers." --Science Books and Films

Childhood Cancer and Functional Impacts Across the Care Continuum

Author: National Academies of Sciences Engineering and Medicine

Publisher:

Published: 2021-09-09

Total Pages:

ISBN-13: 9780309683494

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Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.

The Comprehensive Cancer Center

Author: Mahmoud Aljurf

Publisher: Springer Nature

Published: 2021-10-28

Total Pages: 192

ISBN-13: 3030820521

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This open access book provides a valuable resource for hospitals, institutions, and health authorities worldwide in their plans to set up and develop comprehensive cancer care centers. The development and implementation of a comprehensive cancer program allows for a systematic approach to evidence-based strategies of prevention, early detection, diagnosis, treatment, and palliation. Comprehensive cancer programs also provide a nexus for the running of clinical trials and implementation of novel cancer therapies with the overall aim of optimizing comprehensive and holistic care of cancer patients and providing them with the best opportunity to improve quality of life and overall survival. This book's self-contained chapter format aims to reinforce the critical importance of comprehensive cancer care centers while providing a practical guide for the essential components needed to achieve them, such as operational considerations, guidelines for best clinical inpatient and outpatient care, and research and quality management structures. Intended to be wide-ranging and applicable at a global level for both high and low income countries, this book is also instructive for regions with limited resources. The Comprehensive Cancer Center: Development, Integration, and Implementation is an essential resource for oncology physicians including hematologists, medical oncologists, radiation oncologists, surgical oncologists, and oncology nurses as well as hospitals, health departments, university authorities, governments and legislators.

Childhood Cancer Survivorship

Author: National Research Council

Publisher: National Academies Press

Published: 2003-10-15

Total Pages: 225

ISBN-13: 0309088984

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Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.

Cancer Incidence and Survival Among Children and Adolescents

Author:

Publisher:

Published: 1999

Total Pages: 194

ISBN-13:

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Having Children After Cancer

Author: Gina M. Shaw

Publisher: Celestial Arts

Published: 2011-02-22

Total Pages: 226

ISBN-13: 1587613654

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Yes, you can have children after cancer. When faced with a cancer diagnosis, many doctors and patients rush full-speed ahead into treatment, giving minimal attention to the potential fertility implications. Luckily, the field of oncofertility is growing quickly, and medical writer Gina Shaw, herself a cancer survivor, is ready to unravel the complex and evolving issues involved in pre- and post-cancer fertility and family-building options—for both men and women. Having Children After Cancer gives you all the tools you need to: Understand how different cancers can affect fertility Identify which treatments―chemo, radiation, and surgery―can potentially impair your fertility Discuss fertility-sparing treatment options with your doctor Select the fertility preservation method that’s right for you—from freezing eggs, embryos, and sperm to preserving ovarian tissue Analyze the chances of getting pregnant—using natural methods and with in vitro fertilization Determinethe best time to get pregnant (and which drug therapies to avoid while doing so) Have a healthy post-cancer pregnancy Navigate surrogacy and what to tell prospective candidates about your medical history Consider adoption and learn about survivor-friendly adoption programs and countries Find sample medical letters and other insurance-company red-tape busting information Think through the implications of mother- and fatherhood after cancer Figure out how to talk to your children about the big C With a foreword by top oncologist Hope Rugo of the UCSF Cancer Center, this first and only cancer-and-fertility guide for patients and survivors will allow you to be your own best advocate throughout the journey.

Raising an Emotionally Healthy Child When a Parent is Sick (A Harvard Medical School Book)

Author: Paula K. Rauch

Publisher: McGraw Hill Professional

Published: 2005-12-12

Total Pages: 240

ISBN-13: 0071818545

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For families with a seriously ill parent--advice on helping your children cope from two leading Harvard psychiatrists Based on a Massachusetts General Hospital program, Raising an Emotionally Healthy Child When a Parent is Sick covers how you can address children's concerns when a parent is seriously ill, how to determine how children with different temperaments are really feeling and how to draw them out, ways to ensure the child's financial and emotional security and reassure the child that he or she will be taken care of.