Damaged Goods?
Author: Adina Nack
Publisher: Temple University Press
Published: 2009-08-21
Total Pages: 264
ISBN-13: 1592137091
DOWNLOAD EBOOK →How living with a chronic, stigmatizing, and contagious disease transforms women's lives.
Lanterna Rally
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Chapters - Living with an Incurable Disease
Author: Matthew Butner
Publisher:
Published: 2014-03-14
Total Pages: 90
ISBN-13: 9781478728504
DOWNLOAD EBOOK →As my wife and I sat in that hospital parking lot on that cold grey February morning following my initial ALS diagnoses, she stated, "Our lives have just changed." I agreed. Naturally at first I struggled with the physical and psychological realization of my incurable disease. I captured my personal reflections regarding how I was going to face my new life reality. I wrote about my sadness and my fears. I also wrote about my values and priorities. I became aware of how significant we are to each other. I became aware that care providers are usually the forgotten group during such transitions. The world took on a new brilliance. I concluded that my disease offered me a gift. The gift of knowing when and how I was going to die. I found myself retrieving my personal reflections during challenging times. I found them helpful even comforting as I "just kept going." I called them "Chapters" as they represented sequential events and observations. Indeed our lives did change on that cold February morning. Our lives changed for the better. This disease has made me a better person. It has reminded me that life is a gift as well as a journey with those who are important to us. Read on and confirm and/or rediscover the significance and beauty of your personal journey regardless of your challenges - for we all are disabled in some way or another and we will all die. -Matthew Butner
What Doesn't Kill You
Author: Tessa Miller
Publisher: Henry Holt and Company
Published: 2021-02-02
Total Pages: 240
ISBN-13: 1250751462
DOWNLOAD EBOOK →"Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Healthcare Community Synergism between Patients, Practitioners, and Researchers
Author: Bryan, Valerie C.
Publisher: IGI Global
Published: 2016-07-13
Total Pages: 348
ISBN-13: 1522506411
DOWNLOAD EBOOK →Proper health education is a vital component to ensuring patients satisfaction, safety, and well-being. To achieve this goal, interdisciplinary collaboration has emerged as an innovative method for promoting healthy living. Healthcare Community Synergism between Patients, Practitioners, and Researchers is an authoritative reference source for the latest scholarly research on the various collaborative efforts to improve the current state of health systems and patient education. Highlighting research methodologies aimed to enrich the quality of available information in healthcare environments, this book is ideally designed for medical professionals, educators, and researchers.
Model Patient
Author: Karen Duffy
Publisher: Harper Collins
Published: 2009-10-13
Total Pages: 324
ISBN-13: 0061748145
DOWNLOAD EBOOK →From Revlon spokesmodel to film actress to one of People magazine's "50 Most Beautiful People," Karen Duffy was living the life most of us only dream of. Then her whirlwind life of celebrity parties came to an abrupt, grinding halt when she was stricken with a serious illness in one of its rarest forms: sarcoidosis of the central nervous system. Duffy soon realized that the only way for her to survive was not to take the disease too seriously. Instead of hiding from life, she chose to run toward it. She learned to embrace the chaos of a life-threatening disease with a wit and humor that helped her to find the love of her life at a time when things seemed darkest. Model Patient is a gripping, inspiring, and hilarious memoir that recounts the singular triumphs and tragedies of coping with a chronic, life-threatening disease.
Palliative and End of Life Nursing Care
Author: Beth Hardy
Publisher: SAGE
Published: 2023-03-03
Total Pages: 162
ISBN-13: 152978574X
DOWNLOAD EBOOK →Palliative and end of life care are an essential component of nursing practice. This book provides students with the key information they need to deliver effective and safe end of life care for patients and their families. Crucially, it also creates opportunities for them to reflect on their own perspectives on death and dying and explore the impact of this on their practice. Key features Fully mapped to the NMC standards of proficiency for registered nurses (2018) Helps you to develop a holistic understanding of the fundamental principles and practice of palliative and end of life care Activities encourage you reflect on your own perspectives of death and dying and to consider the impact this has on your practice Case studies bring the theory to life and illustrate the real world applicability
Growing up in Mister Rogers’ Real Neighborhood
Author: Chris Rodell
Publisher: iUniverse
Published: 2019-09-10
Total Pages: 195
ISBN-13: 1532080840
DOWNLOAD EBOOK →In a world that cries out for civility and healing, this is the only book about Mister Rogers' Neighborhood by an author who actually calls the place home. Known for his joyful humor, author Chris Rodell tells the story of how Latrobe influenced a young Fred Rogers, how the adult Fred Rogers influenced Latrobe and how both combined to influence him and the world. It relates how visionary educators are beginning to equate Mister Rogers with spiritual leaders like Gandhi and Martin Luther King Jr. It tells the stories of couples he married, souls he saved and asks if calling him "Christ-like" is blasphemous or accurate. It has previously untold stories of Rogers being a life-saving superhero and of him being perfectly human. Governor Tom Ridge in his admiring foreword says: "Rodell writes about Latrobe and its native son the way Sinatra sings about New York, unflinching about the gritty realities, but with abiding affection and relentless positivity about the future." In the end, the book is about how we can turn the entire planet into Mister Rogers' Neighborhood beginning inside our very own hearts.
Potter and Perry's Fundamentals of Nursing: Third South Asia Edition EBook
Author: Suresh Sharma
Publisher: Elsevier Health Sciences
Published: 2021-03-15
Total Pages: 1363
ISBN-13: 8131257835
DOWNLOAD EBOOK →Fully compliant to the new curriculum prescribed by the Indian Nursing Council Comprehensive presentation of historical background of nursing and health care policies in Indian. Primary prevention of communicable diseases like H1N1 and COVID-19 Two new appendixes: A. Diagnostic testing, and B. First Aid and Emergencies New Topics added: Personal Protective Equipment (PPE), Universal Immunization Program, and Biomedical Waste Management regulations in India. AYUSH, and Accreditation agencies like NABH Organ donation, confidentiality of patient records regulations in India Indian National Health Policy 2017, Code of Ethics for Nurses in India, medicolegal issues in health care in India
The Sociology of Long Term Conditions and Nursing Practice
Author: Elaine Denny
Publisher: Bloomsbury Publishing
Published: 2009-02-25
Total Pages: 304
ISBN-13: 113702125X
DOWNLOAD EBOOK →In recent years there have been major developments in how long term conditions are managed and so it is important nurses understand the rationale behind policy initiatives and their implications for practice. This timely book provides a unique examination of the sociology surrounding long term conditions and the experiences of the patients who have them. It examines the social context of chronic illness and contains individual chapters on the common long term conditions present in the United Kingdom today.
Chronic Illness, Vulnerability and Social Work
Author: Liz Price
Publisher: Routledge
Published: 2015-05-01
Total Pages: 227
ISBN-13: 1136165452
DOWNLOAD EBOOK →Whilst the body has recently assumed greater sociological significance, there has been less engagement in social work and social care on the bodily experience of health, illness and disease. This innovative volume redresses the balance by exploring chronic illness and social work, through the specific lens of autoimmunity, engaging in wider debates around vulnerability, resistance and the lived experience of ongoing ill-health. Moving beyond existing conceptualisations of vulnerability as an issue of mental distress, ageing, child protection and poverty, Price and Walker demonstrate the role that society has to play in actively engaging the physical body, rather than working around and through it. The book focuses on auto-immune conditions such as lupus, multiple sclerosis, rheumatoid arthritis and scleroderma. Conditions like these allow for an exploration of the materiality of illness which exacerbates social and economic vulnerability and may precipitate personal and social crises, requiring a variety of interventions and support. The risks and challenges associated with chronic illness include disruptions to a sense of self and identity, altered relationships and the renegotiation of roles and responsibilities in a variety of relationships in addition to an economic impact, with the potential for disruption to employment status and financial insecurity. This text opens up a range of debates around some of the central concerns of the social work profession, including vulnerability, ill-health, and independence. It will be of interest to scholars and students of social work, nursing, disability studies, medicine and the social sciences.
