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Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-08

Total Pages: 367

ISBN-13: 0309448093

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Caring for the Family Caregiver

Author: Elaine Wittenberg

Publisher: Oxford University Press, USA

Published: 2020-09-11

Total Pages: 241

ISBN-13: 0190055235

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"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--

Patient Safety and Quality

Author: Ronda Hughes

Publisher: Department of Health and Human Services

Published: 2008

Total Pages: 592

ISBN-13:

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"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Textbook of Palliative Care Communication

Author: Elaine Wittenberg

Publisher:

Published: 2015-11-20

Total Pages: 457

ISBN-13: 0190201703

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'The Textbook of Palliative Care Communication' is the authoritative text on communication in palliative care. Uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, it unites clinicians and academic researchers interested in the study of communication.

Share the Care

Author: Cappy Capossela

Publisher: Simon and Schuster

Published: 2010-12-21

Total Pages: 372

ISBN-13: 1439147884

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You Don't Have to Do It Alone Whether you're prepared for it or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness or injury, or when you find your elderly parent needs help. As you'll soon discover, the range of tasks and responsibilities involved are overwhelming. Share The Care offers a sensible and loving solution: a unique group approach that can turn a circle of ordinary people into a powerful caregiving team. Share The Care shows you how to: Create a caregiver "family" from friends, real family members, neighbors, coworkers, and acquaintances. Hold a meeting to organize your group, and introduce members to the Share The Care systems that guarantee every job will be done and no one person will have to do too much. Discover the hidden talents within the group, make the most of their resources, cope with group issues, and stay together in the face of adversity. Included here are valuable guidelines, compassionate suggestions, and a simple-to-use workbook section that together offer support to free the patient from worry and the caregivers from burnout. Share The Care offers friends and family the best answer ever to the frequently asked question "What can I do?"

The Role of Human Factors in Home Health Care

Author: National Research Council

Publisher: National Academies Press

Published: 2010-11-14

Total Pages: 322

ISBN-13: 0309156297

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The rapid growth of home health care has raised many unsolved issues and will have consequences that are far too broad for any one group to analyze in their entirety. Yet a major influence on the safety, quality, and effectiveness of home health care will be the set of issues encompassed by the field of human factors research-the discipline of applying what is known about human capabilities and limitations to the design of products, processes, systems, and work environments. To address these challenges, the National Research Council began a multidisciplinary study to examine a diverse range of behavioral and human factors issues resulting from the increasing migration of medical devices, technologies, and care practices into the home. Its goal is to lay the groundwork for a thorough integration of human factors research with the design and implementation of home health care devices, technologies, and practices. On October 1 and 2, 2009, a group of human factors and other experts met to consider a diverse range of behavioral and human factors issues associated with the increasing migration of medical devices, technologies, and care practices into the home. This book is a summary of that workshop, representing the culmination of the first phase of the study.

The Caregiving Trap

Author: Pamela D. Wilson

Publisher:

Published: 2015-10-06

Total Pages: 0

ISBN-13: 9781630475352

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"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy

Caregiver Family Therapy

Author: Sarah Honn Qualls

Publisher: American Psychological Association (APA)

Published: 2013

Total Pages: 0

ISBN-13: 9781433812149

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Caring for an older family member with physical or cognitive impairments is a difficult, strenuous process. Caregivers often struggle to balance their own needs with those of the care recipient. Their relationships with family, friends, coworkers, and even the care recipient can suffer as well. As a result, family members often seek professional help to guide them through the caregiving process. This book presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging adult. CFT consists of three core stages: Identifying the problem Structuring caregiver roles Ensuring caregiver self-care Transition stages bridge one core stage to the next, helping caregivers structure care for the older adult, examine the impact of caregiving role structures, and consider broader effects of caregiving. As new challenges arise, the stages are repeated and the CFT process begins anew. Full of rich clinical examples, this book will help therapists and other service providers meet the complex, diverse needs of caregiving families.

Activities for the Family Caregiver

Author: Scott Silknitter

Publisher: R.O.S. Therapy Systems

Published: 2016-03-16

Total Pages: 140

ISBN-13: 9781943285228

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Caregiving is hard. For most families, it is an unexpected change to your life that you make without question because you are caring for a loved one. Let us help you make things a little easier with common sense and proven ideas. A unique blend of decades of long term care experience and quality of life experience and two decades of caring for a loved one at home led to the Activities for the Family Caregiver: Caregiving 101 book. The book offers information and insight to enhance quality of life for family caregivers and their loved ones. Whether it is heart disease, cancer, stroke, COPD, ALS, Parkinson's, dementia, Alzheimer's or any issue where you are forced to care for someone, we can help. Learn new communication and engagement strategies to improve time spent with your loved one. Gain new insight as you learn the "how to's" and "why" techniques of activities of daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy. Written by nationally-recognized leaders, Activities for the Family Caregiver: Lewy Body Dementia: How to Engage / How to Live provides much-needed information to address the unique social needs of those with LBD and those who care for them. TOPICS COVERED IN THIS BOOK Lewy Body Dementia Overview Family, Friends and the Benefits of Activities Know Your Loved One-Information Gathering and Assessment Communicating and Motivating for Success Customary Routines and Preferences Planning and Executing Activities Leisure Activity Categories - Types, Topics, and Tips Activities of Daily Living - Tips and Suggestions Home Preparation Personal History Form

Profiles in Caregiving

Author: Carol S. Aneshensel

Publisher: Elsevier

Published: 1995-09-15

Total Pages: 406

ISBN-13: 0080539831

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Given medical advances and greater understanding of healthful living habits, people are living longer lives. Proportionally speaking, a greater percentage of the population is elderly. Despite medical advances, there is still no cure for dementia, and as elderly individuals succumb to Alzheimer's Disease or related dementia, more and more people are having to care their elderly parents and /or siblings. Profiles in Caregiving is practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. This book discusses recent research on stress factors associated with caregiving, and what factors impact on successful versus non-successful adaptation to the care-giving role. This is an expanding field in gerontology, and is also of interest to personality and social psychologists studying stress and interpersonal relations. Although there are many books on the cause and treatment of dementia, there has been a book that provides a research investigation into the factors associated with effective caregiving to dementia patients. Conceptualizes caregiving as a multistage career whose impact on the caregiver continues to be felt after in-home care has ceased Based upon a longitudinal survey of a demographically diverse sample of principal caregivers over a three-year period Identifies caregivers who are most at-risk for adverse adaptation to the role Describes preventative and clinical intervention strategies Identifies post-care risk and issues Identifies antecedents to successful adaptation State of the art analytic techniques Graphic presentation of empirical findings Renowned multidisciplinary research team