Care of Adults with Chronic Childhood Conditions

Care of Adults with Chronic Childhood Conditions PDF

Author: Mariecel Pilapil

Publisher: Springer

Published: 2016-11-24

Total Pages: 436

ISBN-13: 3319438271

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This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.

When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness PDF

Author: Frank J. Sileo

Publisher: American Psychological Association (APA)

Published: 2021-01-26

Total Pages: 419

ISBN-13: 9781433833816

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Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Primary Care of the Child With a Chronic Condition E-Book

Primary Care of the Child With a Chronic Condition E-Book PDF

Author: Patricia Jackson Allen

Publisher: Elsevier Health Sciences

Published: 2009-06-25

Total Pages: 880

ISBN-13: 032308088X

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Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care. This is the only book authored by Nurse Practitioners that focuses on managing the primary health care needs of children with chronic conditions. More than 60 expert contributors provide the most current information available on specific conditions. Comprehensive summary boxes at the end of all chronic conditions chapters provide at-a-glance access to key information. Resource lists at the end of each chronic condition chapter direct you to helpful websites, national organizations, and additional sources of information that you can share with parents and families. Updated references ensure you have access to the most current, evidence-based coverage of the latest research findings and management protocols. Four new chapters — Celiac Disease, Eating Disorders, Muscular Dystrophy, and Obesity — keep you up to date with the latest developments in treating these conditions. Autism content is updated with the latest research on autism spectrum disorders, including current methods of evaluation, identification, and management. Coverage of systems of care features new information on how to help families obtain high-quality and cost-effective coordinated services within our complex health care system. Easy-to-find boxes in the chronic conditions chapters summarize important information on treatment, associated problems, clinical manifestations, and differential diagnosis.

Helping Children and Adolescents with Chronic and Serious Medical Conditions

Helping Children and Adolescents with Chronic and Serious Medical Conditions PDF

Author: Nancy Boyd Webb

Publisher: John Wiley & Sons

Published: 2010-10-28

Total Pages: 391

ISBN-13: 111801216X

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Praise for Helping Children and Adolescents with Chronic and Serious Medical Conditions A Strengths-Based Approach "Helping Children and Adolescents with Chronic and Serious Medical Conditionsprovides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative CareLucile Packard Children's Hospital at Stanford An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach presents practical guidance on integrating the latest research into evidence-based practice to ensure the best client care. Edited by a top scholar in the field, this essential resource contains contributions from renowned specialists in various helping fields. Utilizing an inter-professional perspective, helping professionals will draw from the experiences and expertise of a wide range of medical professionals, providing a "window" into their roles, responsibilities, and challenges, offering the most effective approaches for working with this special population of children and their families. Equipping practitioners with the knowledge and skills needed to encourage children's resilience and help them build their emotional strengths, this book uses a caring yet authoritative tone and discusses: The emotional impact of illness on the individual and the family Child-life practice in hospitals School-based interventions for children and adolescents with medical conditions How to meet the spiritual as well as emotional needs of children with chronic and life-threatening illness With thoughtful coverage of positive helping approaches that encourage family and individual strengths, Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach is an invaluable resource for social workers, teachers, school counselors, and other mental health and medical professionals who work with medically challenged children and adolescents in every setting.

Caring for Children with Chronic Conditions

Caring for Children with Chronic Conditions PDF

Author:

Publisher: U.S. Government Printing Office

Published: 1998

Total Pages: 132

ISBN-13:

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Head Start program performance standards require that children not be excluded from Head Start solely on the basis of their health care needs. This guide is designed to build staff capacity to make Head Start a safe and welcoming place for children with chronic conditions and their families, and to create a framework for individual planning to meet the special health needs of children with chronic conditions. Following an introductory section, the guide presents three modules. Each module details expected outcomes, key concepts, background information, learning activities, and next steps. Handouts are included for each module. Module One, "Understanding Chronic Conditions," provides an introduction to chronic conditions and guidelines for assessing programs when caring for children with chronic conditions. Module Two, "Essential Principles for Care," demonstrates that responsive, responsible care for children with chronic conditions is family-centered, designed around individual needs, and is safe and legal. Module Three, "Putting It All Together--Caring for Children with Asthma," applies the principles discussed in the first two modules to caring for a child with a common chronic condition. The final sections of the guide contain information for continuing professional development and resources. (SD)

America's Children

America's Children PDF

Author: Institute of Medicine and National Research Council

Publisher: National Academies Press

Published: 1998-10-27

Total Pages: 216

ISBN-13: 0309173930

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America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.

When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness PDF

Author: Frank J. Sileo

Publisher: American Psychological Association

Published: 2021-03-09

Total Pages: 272

ISBN-13: 1433833824

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Silver Medal for Parenting in the Independent Publishers Awards "This is an outstanding book that addresses the challenges of chronic disease in children from multiple viewpoints with a great deal of practical knowledge. Given that Diabetes is one of the most common chronic diseases of childhood, this work will serve to guide families in navigating the sometimes challenging journey to ensure the best possible outcomes for all." - Robert Gabbay, MD, PhD, Chief Scientific and Medical Officer for the American Diabetes Association Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you’re focused on ensuring your child gets the best possible treatments for their symptoms, it’s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

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