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Ethics of Big Data

Author: Kord Davis

Publisher: "O'Reilly Media, Inc."

Published: 2012-09-13

Total Pages: 80

ISBN-13: 1449357490

What are your organization’s policies for generating and using huge datasets full of personal information? This book examines ethical questions raised by the big data phenomenon, and explains why enterprises need to reconsider business decisions concerning privacy and identity. Authors Kord Davis and Doug Patterson provide methods and techniques to help your business engage in a transparent and productive ethical inquiry into your current data practices. Both individuals and organizations have legitimate interests in understanding how data is handled. Your use of data can directly affect brand quality and revenue—as Target, Apple, Netflix, and dozens of other companies have discovered. With this book, you’ll learn how to align your actions with explicit company values and preserve the trust of customers, partners, and stakeholders. Review your data-handling practices and examine whether they reflect core organizational values Express coherent and consistent positions on your organization’s use of big data Define tactical plans to close gaps between values and practices—and discover how to maintain alignment as conditions change over time Maintain a balance between the benefits of innovation and the risks of unintended consequences

The Ethics of Biomedical Big Data

Author: Brent Daniel Mittelstadt

Publisher: Springer

Published: 2016-08-03

Total Pages: 480

ISBN-13: 3319335251

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This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

Data Ethics of Power

Author: Hasselbalch, Gry

Publisher: Edward Elgar Publishing

Published: 2021-12-09

Total Pages: 208

ISBN-13: 1802203117

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Data Ethics of Power takes a reflective and fresh look at the ethical implications of transforming everyday life and the world through the effortless, costless, and seamless accumulation of extra layers of data. By shedding light on the constant tensions that exist between ethical principles and the interests invested in this socio-technical transformation, the book bridges the theory and practice divide in the study of the power dynamics that underpin these processes of the digitalization of the world.

Data Ethics

Author: Gry Hasselbalch

Publisher:

Published: 2016

Total Pages: 202

ISBN-13: 9788771920178

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Research Methodologies and Ethical Challenges in Digital Migration Studies

Author: Marie Sandberg

Publisher:

Published: 2022

Total Pages: 0

ISBN-13: 9788303081223

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This OA book investigates the methodological and ethical dilemmas involved when working with digital technologies and large-scale datasets in relation to ethnographic studies of digital migration practices and trajectories. Digital technologies reshape not only every phase of the migration process itself (by providing new ways to access, to share and preserve relevant information) but also the activities of other actors, from solidarity networks to border control agencies. In doing so, digital technologies create a whole new set of ethical and methodological challenges for migration studies: from data access to data interpretation, privacy protection, and research ethics more generally. Of specific concern are the aspects of digital migration researchers accessing digital platforms used by migrants, who are subject to precarious and insecure life circumstances, lack recognised papers and are in danger of being rejected and deported. Thus, the authors call for new modes of caring for (big) data when researching migrants' digital practices in the configuration of migration and borders. Besides taking proper care of research participants' privacy, autonomy, and security, this also spans carefully establishing analytically sustainable environments for the respective data sets. In doing so, the book argues that it is essential to carefully reflect on researchers' own positioning as being part of the challenge they seek to address.

Big Data Ethics in Research

Author: Nicolae Sfetcu

Publisher: MultiMedia Publishing

Published:

Total Pages: 34

ISBN-13: 6060333060

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The main problems faced by scientists in working with Big Data sets, highlighting the main ethical issues, taking into account the legislation of the European Union. After a brief Introduction to Big Data, the Technology section presents specific research applications. There is an approach to the main philosophical issues in Philosophical Aspects, and Legal Aspects with specific ethical issues in the EU Regulation on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (Data Protection Directive - General Data Protection Regulation, "GDPR"). The Ethics Issues section details the specific aspects of Big Data. After a brief section of Big Data Research, I finalize my work with the presentation of Conclusions on research ethics in working with Big Data. CONTENTS: Abstract 1. Introduction - 1.1 Definitions - 1.2 Big Data dimensions 2. Technology - 2.1 Applications - - 2.1.1 In research 3. Philosophical aspects 4. Legal aspects - 4.1 GDPR - - Stages of processing of personal data - - Principles of data processing - - Privacy policy and transparency - - Purposes of data processing - - Design and implicit confidentiality - - The (legal) paradox of Big Data 5. Ethical issues - Ethics in research - Awareness - Consent - Control - Transparency - Trust - Ownership - Surveillance and security - Digital identity - Tailored reality - De-identification - Digital inequality - Privacy 6. Big Data research Conclusions Bibliography DOI: 10.13140/RG.2.2.11054.46401

The Ethics of Medical Data Donation

Author: Luciano Floridi

Publisher:

Published: 2020-10-08

Total Pages: 198

ISBN-13: 9781013273506

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This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.

Ethics of Big Data

Author: Kord Davis

Publisher: "O'Reilly Media, Inc."

Published: 2012

Total Pages: 80

ISBN-13: 1449311792

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This book contains a framework for productive discussion and thinking about ethics and Big Data in business environments. With the increasing size and scope of information that Big Data technologies can provide business, maintaining an ethical practice benefits from a common framework of understanding and vocabulary for discussing questions about coherent and consistent practices. A framework provides you with a set of conceptual terms and tools that help decision-markers to engage difficult questions the expanding role Big Data plays in an increasing variety of products and services. The approach is to develop a set of terms and concepts, consider ethical principles useful in meaningful business discussions, and then explore and compare several overall views on data handling to help inform the development of an ethics-based data strategy. The focus is to enhance effective decision-making in business rather than legislate what ought to be done with data. In this book, you will learn methods and techniques to facilitate rigorous, productive internal discussion, and express coherent and consistent positions on your organization's perspective on the use of Big Data in commerce.