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Alzheimer's Disease Memoirs

Author: Pramod K Nayar

Publisher: Springer Nature

Published: 2021-12-06

Total Pages: 160

ISBN-13: 981166112X

This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.

Come Back Early Today

Author: Marie Marley

Publisher:

Published: 2011

Total Pages: 260

ISBN-13: 9780983570615

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"'In the world of Alzheimer's memoirs, a rarity-- not, strictly speaking, a 'happy ending,' but a different tale from the usual bleak, grinding, downward spiral into unalloyed misery'"--Cover p. 4.

Losing My Mind

Author: Thomas DeBaggio

Publisher: Simon and Schuster

Published: 2002-04-05

Total Pages: 221

ISBN-13: 0743216725

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When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.

Inside the Dementia Epidemic

Author: Martha Stettinius

Publisher: Dundee-Lakemont Press

Published: 2012-07-23

Total Pages: 400

ISBN-13: 0984932623

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One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.

The Gene Guillotine

Author: Kate Preskenis

Publisher:

Published: 2012-07-01

Total Pages: 306

ISBN-13: 9780983294801

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"Early-onset Alzheimer's disease caused by a rare genetic mutation struck 5 of Kate's family members, beginning with her grandmother at age 39 .... Through the crystal ball of genetics, Kate can find out her future, but does she want to know?" -- P. [4] of cover.

Death in Slow Motion

Author: Eleanor Cooney

Publisher: Harper Collins

Published: 2013-02-26

Total Pages: 274

ISBN-13: 0062275976

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A raw, unsentimental and passionately written memoir about trying to care for a parent with Alzheimer’s When her once-glamorous and witty novelist-mother got Alzheimer's, Eleanor Cooney moved her from her beloved Connecticut home to California in order to care for her. In tense, searing prose, punctuated with the blackest of humor, Cooney documents the slow erosion of her mother's mind, the powerful bond the two shared, and her own descent into drink and despair. But the coping mechanism that finally serves this eloquent writer best is writing, the ability to bring to vivid life the memories her mother is losing. As her mother gropes in the gathering darkness for a grip on the world she once loved, succeeding only in conjuring sad fantasies of places and times with her late husband, Cooney revisits their true past. Death in Slow Motion becomes the mesmerizing story of Eleanor's actual childhood, straight out of the pages of John Cheever; the daring and vibrant mother she remembers; and a time that no longer exists for either of them.

Memoirs of a Caregiver

Author: Cynthia Young

Publisher: iUniverse

Published: 2013-01-31

Total Pages: 220

ISBN-13: 1475970994

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Alzheimers is a memory-robbing, debilitating disease that affects millions of Americans. For most families, having just one member afflicted with Alzheimers disease can be devastating. In her poignant memoir, Cynthia Young shares her story of love and devotion as she learns how to care for four family members stricken with Alzheimers disease over a ten-year period. Young narrates a journey filled with laughter, challenges, and sorrow as she commutes from California to Michigan to care for her mother, two aunts, and a cousin. She provides insight into how the disease progresses and gradually destroys the memory and abilities to learn, reason, make sound judgments, communicate, and carry out daily activities. While sharing her personal story and detailing how she overcame each obstacle along the way, Young also teaches other caregivers how to use valuable resources, navigate the court system as a guardian and conservator, handle the Alzheimers personality, and search for an assisted-living facility. Memoirs of a Caregiver shares one womans inspiring story of unconditional love and courage with the hope that it will encourage and empower other caregivers to be diligent, strong, and, most importantly, to never give up. A portion of the proceeds from this book will be directed to the Alzheimers Association.

The Language of Time

Author: Ashley Bendiksen

Publisher:

Published: 2020-06-12

Total Pages: 336

ISBN-13:

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"My mother developed Alzheimer's at just 48. It didn't make any sense. Worse, there was no cure and no timeline. I became a caregiver overnight, endlessly aware of a heartbreaking new reality - tomorrow was no longer guaranteed. I needed to somehow slow down time, to find answers, to create a miracle (while still managing my own life as a woman in my 20s). At the very least, I had to do my best to capture it all before time ran out - archiving memories and learning all I could about courage, how to live, and how to love." Combining journal entries with transcribed conversations and emotive storytelling, The Language of Time is a real and honest expression of one daughter's sudden and unplanned journey as caregiver. It's a story of hope, strength, courage, and the unbreakable bond between a daughter and her mom. It's a story of womanhood, without the guidance of a mother. And it's a poignant reminder of the ever-passing moments of time with those we love. The Language of Time is a breakthrough memoir that will be appreciated by those who have been touched by caregiving, Alzheimer's/dementia, terminal illness, hospice, or loss of a parent. It shines a light on the unique circumstances of early onset Alzheimer's, and fulfilling the role of caregiver as a young adult. It's also filled with stories of facing life's challenges, love, family, gratitude, personal growth, and self-discovery.

Tangles

Author: Sarah Leavitt

Publisher: Skyhorse

Published: 2012-05-01

Total Pages: 128

ISBN-13: 9781616086398

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In this powerful memoir the the LA Times calls “moving, rigorous, and heartbreaking," Sarah Leavitt reveals how Alzheimer’s disease transformed her mother, Midge, and her family forever. In spare blackand- white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions—shock, denial, hope, anger, frustration—all the while learning to cope, and managing to find moments of happiness. Midge, a Harvard educated intellectual, struggles to comprehend the simplest words; Sarah’s father, Rob, slowly adapts to his new role as full-time caretaker, but still finds time for wordplay and poetry with his wife; Sarah and her sister Hannah argue, laugh, and grieve together as they join forces to help Midge. Tangles confronts the complexity of Alzheimer’s disease, and ultimately releases a knot of memories and dreams to reveal a bond between a mother and a daughter that will never come apart.

The Long Goodbye

Author: Keri Kitay

Publisher: Hachette Australia

Published: 2024-05-01

Total Pages: 223

ISBN-13: 0733651429

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A powerful mix of memoir and hard-earned knowledge, in The Long Goodbye, Keri Kitay charts her family's poignant and devastating journey after their mother was diagnosed with early onset Alzheimer's disease. When Keri Kitay's mother, Terry, was diagnosed with early-onset Alzheimer's disease, nothing could have prepared her family for what lay ahead. The diagnosis and the years that followed rocked their world in unimaginable ways. In this powerful mix of memoir and hard-earned knowledge, Keri charts her family's journey: what life was like before Alzheimer's, the early signs that everybody missed, the day they got the shattering news, coming to terms with the grim prognosis . . . and most devastatingly, witnessing the woman they knew and loved slowly fade away. Poignant and moving, The Long Goodbye is a stirring account of losing a parent to the ravages of an unforgiving disease and a heartfelt exploration of what it means to face this with grace and dignity. This is a story about ordinary family ties which became extraordinary through necessity, about unbreakable bonds and unconditional love, and what holds us close even in the most heartbreaking of circumstances. 'A significant resource for anyone faced with dementia' PROFESSOR HENRY BRODATY