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Patient Zero and the Making of the AIDS Epidemic

Author: Richard A. McKay

Publisher: University of Chicago Press

Published: 2017-11-22

Total Pages: 447

ISBN-13: 022606400X

Now an award-winning documentary feature film The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

The Social Impact of AIDS in the United States

Author: National Research Council

Publisher: National Academies Press

Published: 1993-02-01

Total Pages: 337

ISBN-13: 0309046289

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Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.

HIV and the Blood Supply

Author: Institute of Medicine

Publisher: National Academies Press

Published: 1995-10-05

Total Pages: 349

ISBN-13: 0309053293

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During the early years of the AIDS epidemic, thousands of Americans became infected with HIV through the nation's blood supply. Because little reliable information existed at the time AIDS first began showing up in hemophiliacs and in others who had received transfusions, experts disagreed about whether blood and blood products could transmit the disease. During this period of great uncertainty, decision-making regarding the blood supply became increasingly difficult and fraught with risk. This volume provides a balanced inquiry into the blood safety controversy, which involves private sexual practices, personal tragedy for the victims of HIV/AIDS, and public confidence in America's blood services system. The book focuses on critical decisions as information about the danger to the blood supply emerged. The committee draws conclusions about what was doneâ€"and recommends what should be done to produce better outcomes in the face of future threats to blood safety. The committee frames its analysis around four critical area: Product treatmentâ€"Could effective methods for inactivating HIV in blood have been introduced sooner? Donor screening and referralâ€"including a review of screening to exlude high-risk individuals. Regulations and recall of contaminated bloodâ€"analyzing decisions by federal agencies and the private sector. Risk communicationâ€"examining whether infections could have been averted by better communication of the risks.

Ashamed to Die

Author: Andrew J. Skerritt

Publisher: Chicago Review Press

Published: 2011

Total Pages: 338

ISBN-13: 1569769575

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By focusing on a small town in South Carolina, this study of the HIV/AIDS crisis in the South reveals the hard truths of an ongoing and complex issue. Skerritt contends that the United States has failed to adequately address the threat of HIV and AIDS in communities of color and that taboos about love, race, and sexualitycombined with Southern conservatism, white privilege, and black oppressioncontinue to create an unacceptable death toll. The heartbreak of Americas failure comes alive through case studies of individuals such as Carolyn, a wild child whose rebellion coincided with the advent of AIDS, and Nita, a young woman searching for love and trapped in an abusive relationship. The results are most visible at the towns segregated burial ground where dozens of young black men and women who have died from AIDS are laid to rest. Not only a call to action and awareness, this is a true story of how persons of faith, enduring love, and limitless forgiveness can inspire others by serving as guides for poor communities facing a public health threat burdened with conflicting moral and social conventions.

Tinderbox

Author: Craig Timberg

Publisher: Penguin

Published: 2012-03-01

Total Pages: 539

ISBN-13: 1101560614

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In this groundbreaking narrative, longtime Washington Post reporter Craig Timberg and award-winning AIDS researcher Daniel Halperin tell the surprising story of how Western colonial powers unwittingly sparked the AIDS epidemic and then fanned its rise. Drawing on remarkable new science, Tinderbox overturns the conventional wisdom on the origins of this deadly pandemic and the best ways to fight it today. Recent genetic studies have traced the birth of HIV to the forbidding equatorial forests of Cameroon, where chimpanzees carried the virus for millennia without causing a major outbreak in humans. During the Scramble for Africa, colonial companies blazed new routes through the jungle in search of rubber and other riches, sending African porters into remote regions rarely traveled before. It was here that humans first contracted the strain of HIV that would eventually cause 99 percent of AIDS deaths around the world. Western powers were key actors in turning a localized outbreak into a sprawling epidemic as bustling new trade routes, modern colonial cities, and the rise of prostitution sped the virus across Africa. Christian missionaries campaigned to suppress polygamy, but left in its place fractured sexual cultures that proved uncommonly vulnerable to HIV. Equally devastating was the gradual loss of the African ritual of male circumcision, which recent studies have shown offers significant protection against infection. Timberg and Halperin argue that the same Western hubris that marked the colonial era has hamstrung the effort to fight HIV. From the United Nations AIDS program to the Bush administration's historic relief campaign, global health officials have favored well-meaning Western approaches--abstinence campaigns, condom promotion, HIV testing--that have proven ineffective in slowing the epidemic in Africa. Meanwhile they have overlooked homegrown African initiatives aimed squarely at the behaviors spreading the virus. In a riveting narrative that stretches from colonial Leopoldville to 1980s San Francisco to South Africa today, Tinderbox reveals how human hands unleashed this epidemic and can now overcome it, if only we learn the lessons of the past.

AIDS Doctors

Author: Ronald Bayer

Publisher: Oxford University Press

Published: 2002-05-16

Total Pages: 320

ISBN-13: 0190288213

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Today, AIDS has been indelibly etched in our consciousness. Yet it was less than twenty years ago that doctors confronted a sudden avalanche of strange, inexplicable, seemingly untreatable conditions that signaled the arrival of a devastating new disease. Bewildered, unprepared, and pushed to the limit of their diagnostic abilities, a select group of courageous physicians nevertheless persevered. This unique collective memoir tells their story. Based on interviews with nearly eighty doctors whose lives and careers have centered on the AIDS epidemic from the early 1980s to the present, this candid, emotionally textured account details the palpable anxiety in the medical profession as it experienced a rapid succession of cases for which there was no clinical history. The physicians interviewed chronicle the roller coaster experiences of hope and despair, as they applied newly developed, often unsuccessful therapies. Yet these physicians who chose to embrace the challenge confronted more than just the sense of therapeutic helplessness in dealing with a disease they could not conquer. They also faced the tough choices inherent in treating a controversial, sexually and intravenously transmitted illness as many colleagues simply walked away. Many describe being gripped by a sense of mission: by the moral imperative to treat the disempowered and despised. Nearly all describe a common purpose, an esprit de corps that bound them together in a terrible yet exhilarating war against an invisible enemy. This extraordinary oral history forms a landmark effort in the understanding of the AIDS crisis. Carefully collected and eloquently told, the doctors' narratives reveal the tenacity and unquenchable optimism that has paved the way for taming a 20th-century plague.

Disease Control Priorities, Third Edition (Volume 6)

Author: King K. Holmes

Publisher: World Bank Publications

Published: 2017-11-06

Total Pages: 506

ISBN-13: 1464805253

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Infectious diseases are the leading cause of death globally, particularly among children and young adults. The spread of new pathogens and the threat of antimicrobial resistance pose particular challenges in combating these diseases. Major Infectious Diseases identifies feasible, cost-effective packages of interventions and strategies across delivery platforms to prevent and treat HIV/AIDS, other sexually transmitted infections, tuberculosis, malaria, adult febrile illness, viral hepatitis, and neglected tropical diseases. The volume emphasizes the need to effectively address emerging antimicrobial resistance, strengthen health systems, and increase access to care. The attainable goals are to reduce incidence, develop innovative approaches, and optimize existing tools in resource-constrained settings.

The African AIDS Epidemic

Author: John Iliffe

Publisher: Ohio University Press

Published: 2005-02-15

Total Pages: 372

ISBN-13: 0821442732

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This history of the African AIDS epidemic is a much-needed, accessibly written historical account of the most serious epidemiological catastrophe of modern times. The African AIDS Epidemic: A History answers President Thabo Mbeki’s provocative question as to why Africa has suffered this terrible epidemic. While Mbeki attributed the causes to poverty and exploitation, others have looked to distinctive sexual systems practiced in African cultures and communities. John Iliffe stresses historical sequence. He argues that Africa has had the worst epidemic because the disease was established in the general population before anyone knew the disease existed. HIV evolved with extraordinary speed and complexity, and because that evolution took place under the eyes of modern medical research scientists, Iliffe has been able to write a history of the virus itself that is probably unique among accounts of human epidemic diseases. In giving the African experience a historical shape, Iliffe has written one of the most important books of our time. The African experience of AIDS has taught the world much of what it knows about HIV/AIDS, and this fascinating book brings into focus many aspects of the epidemic in the longer context of massive demographic growth, urbanization, and social change in Africa during the latter half of the twentieth century. The African AIDS Epidemic: A History is a brilliant introduction to the many aspects of the epidemic and the distinctive character of the virus.

And The Band Played on

Author: Randy Shilts

Publisher: Macmillan

Published: 2000-04-09

Total Pages: 666

ISBN-13: 9780312241353

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An investigative account of the medical, sexual, and scientific questions surrounding the spread of AIDS across the country.