A Journey into the Human Experience of Incurable Disease

A Journey into the Human Experience of Incurable Disease PDF

Author: Malcolm de Roubaix

Publisher: Cambridge Scholars Publishing

Published: 2023-06-05

Total Pages: 348

ISBN-13: 1527502406

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Incurable disease is a natural phenomenon, inherent to the human condition. This book critically investigates the uniquely human experience of and response to illness and treatment, which affects the body, the mind, and the very core of human existence and identity. Uncertainties regarding the outcomes of laboratory and other investigations that aid in the diagnosis and assessment of disease exacerbate the apprehension inherent to the diagnosis of incurable disease. An excessively scientific approach may disregard the suffering patient. The book begins by analysing the nature, meaning and significance of hope in the context of disease, and goes on to reflect on the language of medicine and the role of emotion, ideology and politics in disease treatment and research. The epilogue reflects on healing as distinct from physical cures. Without hope, there is no future; without healing, no holistic recovery. The final chapters are devoted to the end-of-life period of this journey. This book is a revision, extension, and reconceptualization of the original Afrikaans publication Hoop, Heling en Harmonie: Dink Nuut Oor Siekte en Genesing, winner of the 2021 Andrew Murray Prize for Theological Publications.

A Journey Into the Human Experience of Incurable Disease

A Journey Into the Human Experience of Incurable Disease PDF

Author: Malcolm De Roubaix

Publisher:

Published: 2023-06

Total Pages: 0

ISBN-13: 9781527502390

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Incurable disease is a natural phenomenon, inherent to the human condition. This book critically investigates the uniquely human experience of and response to illness and treatment, which affects the body, the mind, and the very core of human existence and identity. Uncertainties regarding the outcomes of laboratory and other investigations that aid in the diagnosis and assessment of disease exacerbate the apprehension inherent to the diagnosis of incurable disease. An excessively scientific approach may disregard the suffering patient. The book begins by analysing the nature, meaning and significance of hope in the context of disease, and goes on to reflect on the language of medicine and the role of emotion, ideology and politics in disease treatment and research. The epilogue reflects on healing as distinct from physical cures. Without hope, there is no future; without healing, no holistic recovery. The final chapters are devoted to the end-of-life period of this journey. This book is a revision, extension, and reconceptualization of the original Afrikaans publication Hoop, Heling en Harmonie: Dink Nuut Oor Siekte en Genesing, winner of the 2021 Andrew Murray Prize for Theological Publications.

When Breath Becomes Air

When Breath Becomes Air PDF

Author: Paul Kalanithi

Publisher: Random House

Published: 2016-01-12

Total Pages: 258

ISBN-13: 0812988418

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#1 NEW YORK TIMES BESTSELLER • PULITZER PRIZE FINALIST • This inspiring, exquisitely observed memoir finds hope and beauty in the face of insurmountable odds as an idealistic young neurosurgeon attempts to answer the question What makes a life worth living? NAMED ONE OF PASTE’S BEST MEMOIRS OF THE DECADE • NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • People • NPR • The Washington Post • Slate • Harper’s Bazaar • Time Out New York • Publishers Weekly • BookPage Finalist for the PEN Center USA Literary Award in Creative Nonfiction and the Books for a Better Life Award in Inspirational Memoir At the age of thirty-six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi’s transformation from a naïve medical student “possessed,” as he wrote, “by the question of what, given that all organisms die, makes a virtuous and meaningful life” into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. “I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything,” he wrote. “Seven words from Samuel Beckett began to repeat in my head: ‘I can’t go on. I’ll go on.’” When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.

No Cure for Being Human

No Cure for Being Human PDF

Author: Kate Bowler

Publisher: Random House

Published: 2021-09-28

Total Pages: 225

ISBN-13: 0593230779

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NEW YORK TIMES BESTSELLER • The bestselling author of Everything Happens for a Reason (And Other Lies I’ve Loved) asks, how do you move forward with a life you didn’t choose? “Kate Bowler is the only one we can trust to tell us the truth.”—Glennon Doyle, author of the #1 New York Times bestseller Untamed It’s hard to give up on the feeling that the life you really want is just out of reach. A beach body by summer. A trip to Disneyland around the corner. A promotion on the horizon. Everyone wants to believe that they are headed toward good, better, best. But what happens when the life you hoped for is put on hold indefinitely? Kate Bowler believed that life was a series of unlimited choices, until she discovered, at age thirty-five, that her body was wracked with cancer. In No Cure for Being Human, she searches for a way forward as she mines the wisdom (and absurdity) of today’s “best life now” advice industry, which insists on exhausting positivity and on trying to convince us that we can out-eat, out-learn, and out-perform our humanness. We are, she finds, as fragile as the day we were born. With dry wit and unflinching honesty, Kate Bowler grapples with her diagnosis, her ambition, and her faith as she tries to come to terms with her limitations in a culture that says anything is possible. She finds that we need one another if we’re going to tell the truth: Life is beautiful and terrible, full of hope and despair and everything in between—and there’s no cure for being human.

Living Human

Living Human PDF

Author: Flic Manning

Publisher: Simon and Schuster

Published: 2021-09-14

Total Pages: 158

ISBN-13: 1950906604

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My deepest wish is that reading this book will inspire you to take a look at your human experience and see it for the beautiful, painful blessing that it is. Whether you face illness and pain or you want to build a scalable business, you have the power to do it no matter what life throws at you by doing it your perfectly imperfect way, with your perfectly imperfect body and mind. Flic Manning has lived a life that is anything but traditional. With the odds stacked against her, facing incurable invisible diseases and mental health issues, she has walked the path less traveled to embrace the power she believes we all have inside no matter what complexities we face. In this wellness memoir, Flic takes us through her deeply personal journey, from struggling with pain and illness as a dancer to finding her voice and stepping into her most human, raw, and powerful self as an entrepreneur and wellness advocate. Her story contains nuggets of wellness and mindset wisdom wrapped up in lessons from her journey that are sometimes dark, other times deeply funny, and always inspiring. You will be uplifted, but you will also discover the sustainable wellness steps you can take to make your life a profound and healthy one

The Journey Home

The Journey Home PDF

Author: Lawrence A. Hoffman

Publisher: Beacon Press

Published: 2003-08-01

Total Pages: 236

ISBN-13: 9780807036211

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Rabbi Lawrence A. Hoffman is widely recognized as a leader in bringing spiritual innovation into modern Jewish life and worship. Now, drawing on a lifetime of study, he explores the Jewish way of being in the world-the Jewish relationship to God and to questions of human purpose that lie just below the surface of biblical and rabbinic literature.

Prescription for Survival

Prescription for Survival PDF

Author: Bernard Lown

Publisher: Berrett-Koehler Publishers

Published: 2008

Total Pages: 461

ISBN-13: 1576757854

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Tells the story of how a group of Soviet and American doctors came together to stop nuclear proliferation and ended up winning the Nobel Peace Prize and influencing the course of history. This book also sheds light on what really drove and still drives the nuclear arms race, and the importance of citizen involvement in social change efforts.

Oxford Textbook of Spirituality in Healthcare

Oxford Textbook of Spirituality in Healthcare PDF

Author: Mark Cobb

Publisher: OUP Oxford

Published: 2012-08-09

Total Pages: 512

ISBN-13: 0191502189

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The relationship between spirituality and healthcare is historical, intellectual and practical, and it has now emerged as a significant field in health research, healthcare policy and clinical practice and training. Understanding health and wellbeing requires addressing spiritual and existential issues, and healthcare is therefore challenged to respond to the ways spirituality is experienced and expressed in illness, suffering, healing and loss. If healthcare has compassionate regard for the humanity of those it serves, it is faced with questions about how it understands and interprets spirituality, what resources it should make available and how these are organised, and the ways in which spirituality shapes and informs the purpose and practice of healthcare? These questions are the basis for this resource, which presents a coherent field of enquiry, discussion and debate that is interdisciplinary, international and vibrant. There is a growing corpus of articles in medical and healthcare journals on spirituality in addition to a wide range of literature, but there has been no attempt so far to publish a standard text on this subject. Spirituality in Healthcare is an authoritative reference on the subject providing unequalled coverage, critical depth and an integrated source of key topics. Divided into six sections including practice, research, policy and training, the project brings together international contributions from scholars in the field to provide a unique and stimulating resource.

Chapters - Living with an Incurable Disease

Chapters - Living with an Incurable Disease PDF

Author: Matthew Butner

Publisher:

Published: 2014-03-14

Total Pages: 90

ISBN-13: 9781478728504

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As my wife and I sat in that hospital parking lot on that cold grey February morning following my initial ALS diagnoses, she stated, "Our lives have just changed." I agreed. Naturally at first I struggled with the physical and psychological realization of my incurable disease. I captured my personal reflections regarding how I was going to face my new life reality. I wrote about my sadness and my fears. I also wrote about my values and priorities. I became aware of how significant we are to each other. I became aware that care providers are usually the forgotten group during such transitions. The world took on a new brilliance. I concluded that my disease offered me a gift. The gift of knowing when and how I was going to die. I found myself retrieving my personal reflections during challenging times. I found them helpful even comforting as I "just kept going." I called them "Chapters" as they represented sequential events and observations. Indeed our lives did change on that cold February morning. Our lives changed for the better. This disease has made me a better person. It has reminded me that life is a gift as well as a journey with those who are important to us. Read on and confirm and/or rediscover the significance and beauty of your personal journey regardless of your challenges - for we all are disabled in some way or another and we will all die. -Matthew Butner