A History and Sociology of the Willowbrook State School
Author: David Goode
Publisher: American Association
Published: 2013
Total Pages: 0
ISBN-13: 9781937604059
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Beyond Bystanders
Author: Nimrod Aloni
Publisher: Springer
Published: 2017-04-17
Total Pages: 10
ISBN-13: 9463510265
DOWNLOAD EBOOK →Beyond Bystanders calls for a shift in the professional self-image of teachers from agents of socialization to active advocates of human flourishing, social justice, and world betterment. The editors propose that it is irresponsible for teachers to posit themselves as bystanders and to conceive of globalization as something happening to them. Their role as educators in all disciplines must be to establish educational leadership that would empower students to critically evaluate developing global realities – mass migrations, socioeconomic inequalities, global warming, and the dehumanizing effects of submission to social media and consumerism – and achieve the overarching goals of humanization and facilitation of the fulfilling life. A shared commitment to humanist ethics, pedagogical activism, and social engagement at Kibbutzim College of Education (Tel Aviv) and Wagner College (New York) sparked this collaboration. The authors of the book include educational thinkers such as Nel Noddings, Michael Apple, David Hansen, Pasi Sahlberg, and Wiel Veugelers as well as scholars and practitioners from six different countries and diverse professional and cultural backgrounds. An essential part of our educational enterprise must involve promoting intercultural opportunities, confronting cultural ills and ensuring that civic engagement is more attuned to political realities. Educators in all disciplines can reframe their teaching and schools to be more cooperative and civic-minded and challenge views of marginalized, immigrant, undocumented and refugee communities as strangers. “Education is not only about teaching people to read and to write. It is about teaching human rights and cultural diversity, nourishing peace and fostering inclusive and sustainable development ... I wish to commend Kibbutzim College of Education and Wagner College for joining forces to compile this volume to inspire readers in crafting new models of intellectual and intercultural understanding.” – Irina Bokova, Director-General of UNESCO (from the Foreword)
The Ethics Police?
Author: Robert Klitzman
Publisher: Oxford University Press, USA
Published: 2015
Total Pages: 433
ISBN-13: 0199364605
DOWNLOAD EBOOK →All studies on people involving diseases, from cancer to autism, and behavior. Yet ethical violations persist. At the same time, critics have increasingly attacked these committees for delaying or blocking important studies. Partly, science is changing, and the current system has not kept up. Since the regulations were first conceived 40 years ago, research has burgeoned 30-fold. Studies often now include not a single university, but multiple institutions, and 40 separate IRBs thus need to approve a single project. One committee might approve a study quickly, while others require major changes, altering the scientific design, and making the comparison of data between sites difficult. Crucial dilemmas thus emerge of whether the current system should be changed, and if so, how. Yet we must first understand the status quo to know how to improve it. Unfortunately, these committees operate behind closed doors, and have received relatively little in-depth investigation.
The Oxford Textbook of Clinical Research Ethics
Author: Ezekiel J. Emanuel
Publisher: OUP USA
Published: 2011-02
Total Pages: 848
ISBN-13: 0199768633
DOWNLOAD EBOOK →The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.
White Fragility
Author: Dr. Robin DiAngelo
Publisher: Beacon Press
Published: 2018-06-26
Total Pages: 194
ISBN-13: 0807047422
DOWNLOAD EBOOK →The New York Times best-selling book exploring the counterproductive reactions white people have when their assumptions about race are challenged, and how these reactions maintain racial inequality. In this “vital, necessary, and beautiful book” (Michael Eric Dyson), antiracist educator Robin DiAngelo deftly illuminates the phenomenon of white fragility and “allows us to understand racism as a practice not restricted to ‘bad people’ (Claudia Rankine). Referring to the defensive moves that white people make when challenged racially, white fragility is characterized by emotions such as anger, fear, and guilt, and by behaviors including argumentation and silence. These behaviors, in turn, function to reinstate white racial equilibrium and prevent any meaningful cross-racial dialogue. In this in-depth exploration, DiAngelo examines how white fragility develops, how it protects racial inequality, and what we can do to engage more constructively.
Inventing the Feeble Mind
Author: James Trent
Publisher: Oxford University Press
Published: 2016-11-01
Total Pages: 384
ISBN-13: 0199396205
DOWNLOAD EBOOK →Pity, disgust, fear, cure, and prevention--all are words that Americans have used to make sense of what today we call intellectual disability. Inventing the Feeble Mind explores the history of this disability from its several identifications over the past 200 years: idiocy, imbecility, feeblemindedness, mental defect, mental deficiency, mental retardation, and most recently intellectual disability. Using institutional records, private correspondence, personal memories, and rare photographs, James Trent argues that the economic vulnerability of intellectually disabled people (and often their families), more than the claims made for their intellectual and social limitations, has shaped meaning, services, and policies in United States history.
Nothing About Us Without Us
Author: James I. Charlton
Publisher: Univ of California Press
Published: 1998-03-27
Total Pages: 215
ISBN-13: 0520925440
DOWNLOAD EBOOK →James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
Our Daughter: Our Love, Our Light, Our Joy, Our Pleasure, Heart of Our Hearts Forever
Author: Beth Carol Solomon
Publisher: Xlibris Us
Published: 2021-02-08
Total Pages: 258
ISBN-13: 9781664154872
DOWNLOAD EBOOK →This is a story about an adolescent girl, Francine Josephine, who was abused by her mentally ill birth mother and lived in the dregs of society for the first ten years of her life. She found warmth, kindness, and happiness with her foster mother and birth father, who immediately fell in love and married. Though shut off from beauty and loved so little in her childhood, she grew up to be an empathetic, altruistic, sensitive, forgiving, thoughtful, and compassionate young woman. Such rarities this girl possesses at such a tender age. For these attributes are not often found in ordinary everyday people for they do not appreciate what life has to offer and who take God's gifts for granted. Francine, always believing in the best of all people, always giving them the benefit of the doubt and second chances, always wanting to please everybody and wanting everyone to be happy, is what she happens to be like. Although knowing her parents were estranged from their siblings, it was Francine who brought them together, thus becoming a tight-knit, close, loving family. When she met her paternal grandparents for the first time, she was warm and kind to her grandfather, who was afflicted with dementia and of whom she had no recollection of. As for her grandmother, whom she was named after, she formed a loving and close bond. She is very curious about other people in her parents' lives that she has never met or who have never knew of her existence but nonetheless thinks of them lovingly and as part of herself and her family. But one day, Social Services informed her that her birth mother wants to see her, which she agrees to do, surmising that maybe this woman had been rehabilitated and was remorseful or at least civil, as it was Francine's nature to be understanding. Unfortunately, nothing came about as she had hoped, and for that she suffered from it. But afterward, does Francine regress back into her shell after these past few years of getting to love and trust people, or does she grow up and accept what had happened to her during that one fateful encounter and become the fine young woman that everyone who knows her portrays her to be?
Fred and Me
Author: Allan Goldstein
Publisher:
Published: 2021-03-20
Total Pages: 390
ISBN-13:
DOWNLOAD EBOOK →A second parent's death jettisons an older brother from estranged, resentful sibling, to fierce, angry advocate, from somebody who periodically heard about his institutionalized brother to somebody who rescues a life. A person speaking strangely, walking oddly, looking different is not thought to have feelings, ideas, or desires. That person is "the other." Fred and Me, a Willowbrook Survivor's Story shows the emergence of a person whose childhood and adolescence were lived in the infamous Willowbrook State School. This memoir of two strangers reconnecting while helping each other rediscover themselves portrays the value of enormous devotion when combating the stigma of living differently. This memoir is a love story of brothers reunited.
The Origins of Bioethics
Author: John A. Lynch
Publisher: MSU Press
Published: 2019-09-01
Total Pages: 288
ISBN-13: 1628953802
DOWNLOAD EBOOK →The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.
